Adapting ethical guidelines for adolescent health research to street-connected childre and youth in low- and middle- income countries: A case study from Western Kenya.
Embleton, L., Ott, M. A., Wachira, J., Naanyu, V., Kamanda, A., Makori, D., Ayuku, D., & Braitstein, P. (2015). Adapting ethical guidelines for adolescent health research to street-connected childre and youth in low- and middle- income countries: A case study from Western Kenya. BMC Medical Ethics, 16, pp. 89-100.
The ethics of research with human subjects: Protecting people, advancing science, promoting trust.
Resnik, D. B. (2018). The ethics of research with human subjects: Protecting people, advancing science, promoting trust. Cham, Switzerland: Springer. Print ISBN: 978-3-319-68755-1; Online ISBN: 978-3-319-68756-8.
Children’s perspectives on the benefits and burdens of research participation.
Barned, C., Dobson, J., Stintzi, A., Mack, D., & O’Doherty, K. C. (2018). Children’s perspectives on the benefits and burdens of research participation. AJOB Empirical Bioethics, 9(1), pp. 19-28.
Research ethics committee decision-making in relation to an efficient neonatal trial.
Gale, C., Hyde, M. J., & Modi, N. (2017). Research ethics committee decision-making in relation to an efficient neonatal trial. Archives of Disease in Childhood – Fetal and Neonatal Edition, 102(4), pp. F291-F298.
Youth participation in qualitative research: Challenges and possibilities.
Schelbe, L., Chanmugam, A., Moses, T., Saltzburg, S., Williams, L. R., & Letendre, J. (2015). Youth participation in qualitative research: Challenges and possibilities. Qualitative Social Work, 14(4), pp. 504-521.
Challenges in gaining and re-gaining informed consent among young people on the margins of education.
Aaltonen, S. (2017). Challenges in gaining and re-gaining informed consent among young people on the margins of education. International Journal of Social Research Methodology, 20(4), pp. 329-341.
Anonymity, confidentiality and informed consent: Exploring ethical quandaries and dilemmas in research with and about disabled children’s childhoods.
Thackray, L. (2018). Anonymity, confidentiality and informed consent: Exploring ethical quandaries and dilemmas in research with and about disabled children’s childhoods. In T. Curran & K. Liddiard (Eds.), The Palgrave Handbook of Disabled Children’s Childhood Studies (pp. 299-313). London: Palgrave Macmillan.
Assent for children’s participation in research: Why it matters and making it meaningful.
Oulton, K., Gibson, F., Sell, D., Williams, A., Pratt, L., & Wray, J. (2016). Assent for children’s participation in research: Why it matters and making it meaningful. Child: Care, Health and Development, 42(4), pp. 588-597.
The family context of assent: Comparison of child and parent perspectives on familial decision-making.
Sibley, A., Fitzpatrick, R., Davis, E., Sheehan, M., & Pollard, A. J. (2018). The family context of assent: Comparison of child and parent perspectives on familial decision-making. Children & Society, 32(4), pp.266-278.
Drawing the line at age 14: Why adolescents should be able to consent to participation in research.
Schwartz, R. (2017). Drawing the line at age 14: Why adolescents should be able to consent to participation in research. The Journal of Law, Medicine & Ethics, 45(3), pp. 295-306.