Parental perceptions about informed consent/assent in pediatric research in Jordan.
Khabour, O. F., Alomari, M. A., & Al-sheyab, N. A. (2017). Parental perceptions about informed consent/assent in pediatric research in Jordan. Journal of Empirical Research on Human Research Ethics, 2017, Vol.12(4), pp. 261-268.
Assent in research: The voices of adolescents.
Grady, C., Wiener, L., Abdoler, E., Trauernicht, E., Zadeh, S., Diekema, D. S., .Wilfond, B.S., & Wendler, D. (2014). Assent in Research: The Voices of Adolescents. Journal of Adolescent Health, 54(5), pp. 515-520.
Accuracy of the macarthur competence assessment tool for clinical research (MacCAT-CR) for measuring children’s competence to consent to clinical research.
Hein, I. M., Troost, P. W., Lindeboom, R., & et al. (2014). Accuracy of the macarthur competence assessment tool for clinical research (MacCAT-CR) for measuring children’s competence to consent to clinical research. JAMA Pediatrics, 168(12), pp. 1147-1153.
Assessing children’s competence to consent in research by a standardized tool: A validity study.
Hein, I. M., Troost, P. W., Lindeboom, R., de Vries, M. C., Zwaan, C. M., & Lindauer, R. J. L. (2012). Assessing children’s competence to consent in research by a standardized tool: A validity study. BMC Pediatrics, 12(1), pp. 156-164.
Key factors in children’s competence to consent to clinical research.
Hein, I. M., Troost, P. W., Lindeboom, R., Benninga, M. A., Zwaan, C. M., van Goudoever, J. B., & Lindauer, R. J. (2015). Key factors in children’s competence to consent to clinical research. BMC Medical Ethics, 16(1), pp. 74-79.
Children’s ongoing and relational negotiation of informed assent in child–researcher, child–child and child–parent interaction.
Ericsson, S., & Boyd, S. (2017). Children’s ongoing and relational negotiation of informed assent in child–researcher, child–child and child–parent interaction. Childhood, 2017, Vol.24(3), pp.300-315.
Inclusion with protection: Obtaining informed consent when conducting research with adolescents.
Santelli, J., Haerizadeh, S., & McGovern, T. (2017). Inclusion with protection: Obtaining informed consent when conducting research with adolescents. Florence: UNICEF, Office of Research - Innocenti.
When participants in genomic research grow up: Contact and consent at the age of majority.
Brothers, K. B., Holm, I. A., Childerhose, J. E., Antommaria, A. H. M., Bernhardt, B. A., & al., e. (2016). When participants in genomic research grow up: Contact and consent at the age of majority. The Journal of Pediatrics, 168, pp. 226-231.
An observational study of children’s involvement in informed consent for exome sequencing research.
Miller, V. A., Werner-Lin, A., Walser, S. A., Biswas, S., & Bernhardt, B. A. (2016). An observational study of children’s involvement in informed consent for exome sequencing research. Journal of Empirical Research on Human Research Ethics, 12(1), pp. 6-13.
From informed consent to dissemination: Using participatory visual methods with young people with long-term conditions at different stages of research.
Vindrola-Padros, C., Martins, A., Coyne, I., Bryan, G., & Gibson, F. (2016). From informed consent to dissemination: Using participatory visual methods with young people with long-term conditions at different stages of research. Global Public Health, 11(5-6), pp. 636-650.