Children’s knowledge of the terms of informed assent.
Lobato, L., Gazzinelli, A., Pedroso, L. S., Barbosa, R., Santos, F. M. M., & Gazzinelli, M. F. (2016). Children's knowledge of the terms of informed assent. Revista Bioética, 24, pp. 542-556. Abstract: The objective of this study is to describe the
Research information for minors: Suitable formats and readability. A systematic review.
Grootens‐Wiegers, P., de Vries, M. C., & van den Broek, J. M. (2015). Research information for minors: Suitable formats and readability. A systematic review. Journal of paediatrics and child health, 51(5), pp. 505-511. Please view the abstract for this article via
Readability and visuals in medical research information forms for children and adolescents.
Grootens-Wiegers, P., De Vries, M. C., Vossen, T. E., & Van den Broek, J. M. (2015). Readability and visuals in medical research information forms for children and adolescents. Science Communication, 37(1), pp. 89-117. Please view the abstract for this article via
Comic strips help children understand medical research: Targeting the informed consent procedure to children’s needs.
Grootens-Wiegers, P., de Vries, M. C., van Beusekom, M. M., van Dijck, L., & van den Broek, J. M. (2015). Comic strips help children understand medical research: targeting the informed consent procedure to children's needs. Patient education and counseling, 98(4),
Supporting children to make informed decisions about research participation
Julia Truscott It is now standard practice across most disciplines not only to seek consent from parents/carers but to honour children’s rights and dignity by informing them directly about research participation and seeking their own consent to take part. However, providing
Innovative ethics: Using animated videos when soliciting informed consent of young people for online surveys.
McInroy, L. B. (2017). Innovative ethics: Using animated videos when soliciting informed consent of young people for online surveys. Social Work Research, 41(2), pp.121-128. This research note discusses the potential of animated video to enhance the informed consent process in on-line
Children and young people’s decision-making in social research about sensitive issues.
Moore, T., McArthur, M., Graham, A., Chalmers, J., Powell, M. A., & Taplin, S. (2020). Children and young people’s decision-making in social research about sensitive issues. Children's Geographies, Published online ahead of print, pp. 1-16. Abstract: Limited attention has been
Improving the informed consent process among HIV-infected undisclosed minors participating in a biomedical research: Insights from the multicentre nutritional SNACS study in Senegal.
Hejoaka, F., Varloteaux, M., Desclaux-Sall, C., Ndiaye, S. M., Diop, K., Diack, A., Niasse, F., & Cames, C. (2019). Improving the informed consent process among HIV-infected undisclosed minors participating in a biomedical research: Insights from the multicentre nutritional SNACS study
Using critically reflexive ethics in practice to address issues of representation in children’s rights-based research.
Gaches, S. (2020). Using critically reflexive ethics in practice to address issues of representation in children’s rights-based research. Global Studies of Childhood, Published on-line ahead of print.
Opt-out parental consent in online surveys: Ethical considerations.
Harris, J., & Porcellato, L. (2018). Opt-out parental consent in online surveys: Ethical considerations. Journal of Empirical Research on Human Research Ethics, 13(3), pp. 223-229.