Desiring self-determination in research and beyond: Parental consent requirements and situated ethics for migrant young people living amid changing family dynamics.
Shaw, J. E. (2018). Desiring self-determination in research and beyond: Parental consent requirements and situated ethics for migrant young people living amid changing family dynamics. Children & Society, 32(6), 433-443.
Promoting children’s informed assent in research participation.
Dockett, S., Perry, B., & Kearney, E. (2012). Promoting children’s informed assent in research participation. International Journal of Qualitative Studies in Education, 26(7), pp. 802-828.
Ethical conduct of research in children: Pediatricians and their IRB (Part 1 of 2).
Rose, C. D. (2017). Ethical conduct of research in children: Pediatricians and their IRB (Part 1 of 2). Pediatrics. 139(5), e20163648.
Community perspectives on research consent involving vulnerable children in Western Kenya.
Vreeman, R., Kamaara, E., Kamanda, A., Ayuku, D., Nyandiko, W., Atwoli, L., Ayaya, S., Gisore, P., Scanlon, M., & Braitstein, P. (2012). Community perspectives on research consent involving vulnerable children in Western Kenya. Journal of Empirical Research on Human Research Ethics, 7(4), pp. 44-55.
Adapting ethical guidelines for adolescent health research to street-connected childre and youth in low- and middle- income countries: A case study from Western Kenya.
Embleton, L., Ott, M. A., Wachira, J., Naanyu, V., Kamanda, A., Makori, D., Ayuku, D., & Braitstein, P. (2015). Adapting ethical guidelines for adolescent health research to street-connected childre and youth in low- and middle- income countries: A case study from Western Kenya. BMC Medical Ethics, 16, pp. 89-100.
The ethics of research with human subjects: Protecting people, advancing science, promoting trust.
Resnik, D. B. (2018). The ethics of research with human subjects: Protecting people, advancing science, promoting trust. Cham, Switzerland: Springer. Print ISBN: 978-3-319-68755-1; Online ISBN: 978-3-319-68756-8.
Children’s perspectives on the benefits and burdens of research participation.
Barned, C., Dobson, J., Stintzi, A., Mack, D., & O'Doherty, K. C. (2018). Children's perspectives on the benefits and burdens of research participation. AJOB Empirical Bioethics, 9(1), pp. 19-28.
Research ethics committee decision-making in relation to an efficient neonatal trial.
Gale, C., Hyde, M. J., & Modi, N. (2017). Research ethics committee decision-making in relation to an efficient neonatal trial. Archives of Disease in Childhood - Fetal and Neonatal Edition, 102(4), pp. F291-F298.
Youth participation in qualitative research: Challenges and possibilities.
Schelbe, L., Chanmugam, A., Moses, T., Saltzburg, S., Williams, L. R., & Letendre, J. (2015). Youth participation in qualitative research: Challenges and possibilities. Qualitative Social Work, 14(4), pp. 504-521.
Challenges in gaining and re-gaining informed consent among young people on the margins of education.
Aaltonen, S. (2017). Challenges in gaining and re-gaining informed consent among young people on the margins of education. International Journal of Social Research Methodology, 20(4), pp. 329-341.