Key factors in children’s competence to consent to clinical research.
Hein, I. M., Troost, P. W., Lindeboom, R., Benninga, M. A., Zwaan, C. M., van Goudoever, J. B., & Lindauer, R. J. (2015). Key factors in children’s competence to consent to clinical research. BMC Medical Ethics, 16(1), pp. 74-79.
Children’s ongoing and relational negotiation of informed assent in child–researcher, child–child and child–parent interaction.
Ericsson, S., & Boyd, S. (2017). Children’s ongoing and relational negotiation of informed assent in child–researcher, child–child and child–parent interaction. Childhood, 2017, Vol.24(3), pp.300-315.
Assent and dissent: Ethical considerations in research with toddlers.
Brown, H. R., Harvey, E. A., Griffith, S. F., Arnold, D. H., & Halgin, R. P. (2017). Assent and dissent: Ethical considerations in research with toddlers. Ethics & Behavior, 27(8), pp. 651-664.
Children’s decision-making involvement about research participation: Associations with perceived fairness and self-efficacy.
Miller, V. A., Feudtner, C., & Jawad, A. F. (2017). Children’s decision-making involvement about research participation: Associations with perceived fairness and self-efficacy. Journal of Empirical Research on Human Research Ethics, 12(2), pp. 87-96.
Research with disadvantaged, vulnerable and/or marginalised adolescents.
Auerswald, C. L., Piatt, A. A., & Mirzazadeh, A. (2017). Research with disadvantaged, vulnerable and/or marginalised adolescents. Florence: UNICEF, Office of Research – Innocenti.
“This feels like school!” Revisiting assent and motivation in research with child participants.
Hordyk, S. R. (2017). “This feels like school!” Revisiting assent and motivation in research with child participants. Child and Adolescent Social Work Journal, 34, pp. 583-595.
Development of a consensus operational definition of child assent for research.
Tait, A. R., & Geisser, M. E. (2017). Development of a consensus operational definition of child assent for research. BMC Medical Ethics, 18(1), pp. 41-48.
The Methodology and Ethics of Rights-Based Research with Children.
Bessell, S., Beazley, H., & Waterson, R. (2017). The Methodology and Ethics of Rights-Based Research with Children. In A. Invernizzi, M. Liebel, B. Milne, & R. Budde (Eds.), ‘Children Out of Place’ and Human Rights : In Memory of Judith Ennew (pp. 211-231). Cham: Springer International Publishing.
Inclusion with protection: Obtaining informed consent when conducting research with adolescents.
Santelli, J., Haerizadeh, S., & McGovern, T. (2017). Inclusion with protection: Obtaining informed consent when conducting research with adolescents. Florence: UNICEF, Office of Research – Innocenti.
When participants in genomic research grow up: Contact and consent at the age of majority.
Brothers, K. B., Holm, I. A., Childerhose, J. E., Antommaria, A. H. M., Bernhardt, B. A., & al., e. (2016). When participants in genomic research grow up: Contact and consent at the age of majority. The Journal of Pediatrics, 168, pp. 226-231.