Children’s decision-making involvement about research participation: Associations with perceived fairness and self-efficacy.
Miller, V. A., Feudtner, C., & Jawad, A. F. (2017). Children’s decision-making involvement about research participation: Associations with perceived fairness and self-efficacy. Journal of Empirical Research on Human Research Ethics, 12(2), pp. 87-96.
Research with disadvantaged, vulnerable and/or marginalised adolescents.
Auerswald, C. L., Piatt, A. A., & Mirzazadeh, A. (2017). Research with disadvantaged, vulnerable and/or marginalised adolescents. Florence: UNICEF, Office of Research – Innocenti.
“This feels like school!” Revisiting assent and motivation in research with child participants.
Hordyk, S. R. (2017). “This feels like school!” Revisiting assent and motivation in research with child participants. Child and Adolescent Social Work Journal, 34, pp. 583-595.
Development of a consensus operational definition of child assent for research.
Tait, A. R., & Geisser, M. E. (2017). Development of a consensus operational definition of child assent for research. BMC Medical Ethics, 18(1), pp. 41-48.
The Methodology and Ethics of Rights-Based Research with Children.
Bessell, S., Beazley, H., & Waterson, R. (2017). The Methodology and Ethics of Rights-Based Research with Children. In A. Invernizzi, M. Liebel, B. Milne, & R. Budde (Eds.), ‘Children Out of Place’ and Human Rights : In Memory of Judith Ennew (pp. 211-231). Cham: Springer International Publishing.
Inclusion with protection: Obtaining informed consent when conducting research with adolescents.
Santelli, J., Haerizadeh, S., & McGovern, T. (2017). Inclusion with protection: Obtaining informed consent when conducting research with adolescents. Florence: UNICEF, Office of Research – Innocenti.
When participants in genomic research grow up: Contact and consent at the age of majority.
Brothers, K. B., Holm, I. A., Childerhose, J. E., Antommaria, A. H. M., Bernhardt, B. A., & al., e. (2016). When participants in genomic research grow up: Contact and consent at the age of majority. The Journal of Pediatrics, 168, pp. 226-231.
An observational study of children’s involvement in informed consent for exome sequencing research.
Miller, V. A., Werner-Lin, A., Walser, S. A., Biswas, S., & Bernhardt, B. A. (2016). An observational study of children’s involvement in informed consent for exome sequencing research. Journal of Empirical Research on Human Research Ethics, 12(1), pp. 6-13.
From informed consent to dissemination: Using participatory visual methods with young people with long-term conditions at different stages of research.
Vindrola-Padros, C., Martins, A., Coyne, I., Bryan, G., & Gibson, F. (2016). From informed consent to dissemination: Using participatory visual methods with young people with long-term conditions at different stages of research. Global Public Health, 11(5-6), pp. 636-650.
A cognitive approach for design of a multimedia informed consent video and website in pediatric research.
Antal, H., Bunnell, H. T., McCahan, S. M., Pennington, C., Wysocki, T., & Blake, K. V. (2017). A cognitive approach for design of a multimedia informed consent video and website in pediatric research. Journal of Biomedical Informatics, 66, pp. 248-258.