To stop or not to stop: Dissent and undue burden as reasons to stop participation in paediatric research.
Bos, W., Westra, A., de Beaufort, I., & van de Vathorst, S. (2017). To stop or not to stop: Dissent and undue burden as reasons to stop participation in paediatric research. Journal of Medical Ethics, 43(8), pp. 519-523.
Participatory research with very young children.
Bitou, A., & Waller, T. (2017). Participatory research with very young children. In T. Waller, E. Ärlemalm-Hagsér, E. Sandseter, Beate Hansen, L. Lee-Hammond, K. Lekies, & S. Wyver (Eds.), The SAGE Handbook of Outdoor Play and Learning (pp. 431-445). London: Sage.
A developmental approach to child assent for nontherapeutic research.
Miller, V. A., & Nelson, R. M. (2006). A developmental approach to child assent for nontherapeutic research. The Journal of Pediatrics, 149(1), pp. 25-30.
Children’s consent and paediatric research: Is it appropriate for healthy children to be the decision-makers in clinical research?
John, T., Hope, T., Savulescu, J., Stein, A., & Pollard, A. J. (2008). Children’s consent and paediatric research: Is it appropriate for healthy children to be the decision-makers in clinical research? Archives of Disease in Childhood, 93(5), pp. 379.
Against harmful research on non-agreeing children.
Chwang, E. (2015). Against harmful research on non-agreeing children. Bioethics, 29(6), pp. 431-439.
Ethical issues in child and adolescent psychotherapy research.
Fried, A., & Fisher, C. (2017). Ethical issues in child and adolescent psychotherapy research. In J. R. Weisz & A. E. Kazdin (Eds.), Evidence-based psychotherapies for children and adolescents (Third ed.). New York: The Guilford Press.
Parental perceptions about informed consent/assent in pediatric research in Jordan.
Khabour, O. F., Alomari, M. A., & Al-sheyab, N. A. (2017). Parental perceptions about informed consent/assent in pediatric research in Jordan. Journal of Empirical Research on Human Research Ethics, 2017, Vol.12(4), pp. 261-268.
Assent in research: The voices of adolescents.
Grady, C., Wiener, L., Abdoler, E., Trauernicht, E., Zadeh, S., Diekema, D. S., .Wilfond, B.S., & Wendler, D. (2014). Assent in Research: The Voices of Adolescents. Journal of Adolescent Health, 54(5), pp. 515-520.
Accuracy of the macarthur competence assessment tool for clinical research (MacCAT-CR) for measuring children’s competence to consent to clinical research.
Hein, I. M., Troost, P. W., Lindeboom, R., & et al. (2014). Accuracy of the macarthur competence assessment tool for clinical research (MacCAT-CR) for measuring children’s competence to consent to clinical research. JAMA Pediatrics, 168(12), pp. 1147-1153.
Assessing children’s competence to consent in research by a standardized tool: A validity study.
Hein, I. M., Troost, P. W., Lindeboom, R., de Vries, M. C., Zwaan, C. M., & Lindauer, R. J. L. (2012). Assessing children’s competence to consent in research by a standardized tool: A validity study. BMC Pediatrics, 12(1), pp. 156-164.