Rhetoric to reality: Challenges and opportunities for embedding young people’s involvement in health research.
Brady, L-M. (2020). Rhetoric to reality: Challenges and opportunities for embedding young people’s involvement in health research. In H. McLaughlin, P. Beresford, C. Cameron, H. Casey, & J. Duffy (Eds.), The Routledge Handbook of Service User Involvement in Human Services Research and Education (pp. 454-466). Routledge: Abingdon. eBook ISBN: 9780429433306. Abstract: Whilst there is growing […]
The co-productive imagination: A creative, speculative and eventful approach to co-producing research.
Duggan, J. (2021). The co-productive imagination: a creative, speculative and eventful approach to co-producing research. International Journal of Social Research Methodology, 24(3), pp. 355-367. Abstract: This article explores the co-production of research as creative, speculative, and eventful rather than as research processes determined by equality, empowerment and social justice. There are persuasive critiques of participatory […]
Tensions and challenges concerning ethics on video research with young children – Experiences from an international collaboration among seven countries.
Rutanen, N., de Souza Amorim, K., Marwick, H., & White, J. (2018). Tensions and challenges concerning ethics on video research with young children – Experiences from an international collaboration among seven countries. Video Journal of Education and Pedagogy, 3(1), pp. 1-14. This paper shares insights from a collaborative study across seven countries, drawing particular attention […]
Doing it write: Representation and responsibility in writing up participatory research involving young people.
Wilkinson, C., & Wilkinson, S. (2017). Doing it write: Representation and responsibility in writing up participatory research involving young people. Social Inclusion, 5(3), pp. 219-227. Abstract: This article adopts a reflexive stance as the authors look back on their doctoral research projects; the first author exploring young people’s relationships with community radio, and the second […]
Child protection and confidentiality: Surveying children’s experiences of violence, abuse and neglect. By Lorraine Radford
You can download this ERIC case study as a pdf in English, français, español, 한국어, Türkçe and Bahasa Indonesia. In 2008 the National Society for the Prevention of Cruelty to Children (NSPCC) decided to set up a comprehensive UK-wide study of the prevalence and impact of violence towards children and young people at home, in […]
Facilitating future benefit when a participant has a degenerative illness and cannot give consent. Andrew Williams
You can download this ERIC case study as a pdf in English, français, español, 한국어, Türkçe and Bahasa Indonesia. Very often a child with a severe fixed, or an evolving, neurodegenerative condition cannot give meaningful consent to research. The child’s age and the profundity of their evolving neurological condition make consent impossible. Neurodegenerative conditions are […]
Dilemmas of dealing with distress during interviews with children. By Elsbeth Robson & Ruth Evans
You can download this ERIC case study as a pdf in English, français, español, 한국어, Türkçe and Bahasa Indonesia. We conducted research projects involving interviews with young caregivers in the context of the HIV epidemic in Zimbabwe, Tanzania and the UK. The children had recent or current caregiving responsibilities looking after a chronically sick family […]
Working with socially excluded and multiply vulnerable children in research: Using participatory methods with young carers. By Jo Aldridge
Since the early 1990s, evidence from research studies on young caring has helped to inform and shape health and social care policy and practice in the UK, and has meant that children who provide informal care for their sick or disabled parents (or other relatives) in the home have access to dedicated young carers’ services. […]
Reporting suspected abuse or neglect in research involving children.
Resnik, D. B., & Randall, D. C. (2018). Reporting suspected abuse or neglect in research involving children. Journal of Medical Ethics, 44(8), 555-559.
The family context of assent: Comparison of child and parent perspectives on familial decision-making.
Sibley, A., Fitzpatrick, R., Davis, E., Sheehan, M., & Pollard, A. J. (2018). The family context of assent: Comparison of child and parent perspectives on familial decision-making. Children & Society, 32(4), pp.266-278.