Tensions and challenges concerning ethics on video research with young children – Experiences from an international collaboration among seven countries.
Rutanen, N., de Souza Amorim, K., Marwick, H., & White, J. (2018). Tensions and challenges concerning ethics on video research with young children - Experiences from an international collaboration among seven countries. Video Journal of Education and Pedagogy, 3(1), pp.
Doing it write: Representation and responsibility in writing up participatory research involving young people.
Wilkinson, C., & Wilkinson, S. (2017). Doing it write: Representation and responsibility in writing up participatory research involving young people. Social Inclusion, 5(3), pp. 219-227. Abstract: This article adopts a reflexive stance as the authors look back on their doctoral research
Child protection and confidentiality: Surveying children’s experiences of violence, abuse and neglect. By Lorraine Radford
In 2008 the National Society for the Prevention of Cruelty to Children (NSPCC) decided to set up a comprehensive UK-wide study of the prevalence and impact of violence towards children and young people at home, in school and in the
Facilitating future benefit when a participant has a degenerative illness and cannot give consent. Andrew Williams
Very often a child with a severe fixed, or an evolving, neurodegenerative condition cannot give meaningful consent to research. The child’s age and the profundity of their evolving neurological condition make consent impossible. Neurodegenerative conditions are extremely rare, are still
Dilemmas of dealing with distress during interviews with children. By Elsbeth Robson & Ruth Evans
We conducted research projects involving interviews with young caregivers in the context of the HIV epidemic in Zimbabwe, Tanzania and the UK. The children had recent or current caregiving responsibilities looking after a chronically sick family member (often a parent
Working with socially excluded and multiply vulnerable children in research: Using participatory methods with young carers. By Jo Aldridge
Since the early 1990s, evidence from research studies on young caring has helped to inform and shape health and social care policy and practice in the UK, and has meant that children who provide informal care for their sick or
Reporting suspected abuse or neglect in research involving children.
Resnik, D. B., & Randall, D. C. (2018). Reporting suspected abuse or neglect in research involving children. Journal of Medical Ethics, 44(8), 555-559.
The family context of assent: Comparison of child and parent perspectives on familial decision-making.
Sibley, A., Fitzpatrick, R., Davis, E., Sheehan, M., & Pollard, A. J. (2017). The family context of assent: Comparison of child and parent perspectives on familial decision-making. Children & Society, Published on-line ahead of print.
Why collaborate with children in health research: An analysis of the risks and benefits of collaboration with children.
Bird, D., Culley, L., & Lakhanpaul, M. (2013). Why collaborate with children in health research: An analysis of the risks and benefits of collaboration with children. Archives of disease in childhood - Education & practice edition, 98, pp. 42-48.
Do current consent and confidentiality requirements impede or enhance research with children with learning disabilities?
Scott, J. K., Wishart, J. G., & Bowyer, D. J. (2006). Do current consent and confidentiality requirements impede or enhance research with children with learning disabilities? Disability & Society, 21(3), pp. 273-287.