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Tag: North America

Referring and reporting research participants at risk: Views from urban adolescents.

Fisher, C. B., Higgins-D’Alessandro, A., Rau, J.-M. B., Kuther, T. L., & Belanger, S. (1996). Referring and reporting research participants at risk: Views from urban adolescents. Child Development, 67(5), pp. 2086-2100.

Preserving and enhancing the responsible conduct of research involving children and youth: A response to proposed changes in federal regulations.

Fisher, C. B., Brunnquell, D. J., Hughes, D. L., Liben, L. S., Maholmes, V., Plattner, S., Russell, S.T., & Susman, E. J. (2013). Preserving and enhancing the responsible conduct of research involving children and youth: A response to proposed changes in federal regulations. Social Policy Report, 27(1), pp. 1-22.

Towards a relational ethics: Rethinking ethics, agency and dependency in research with children and youth

Meloni, F., Vanthuyne, K., & Rousseau, C. (2015). Towards a relational ethics: Rethinking ethics, agency and dependency in research with children and youth. Anthropological Theory, 15(1), pp. 106-123.

Reducing health disparities and enhancing the responsible conduct of research involving LGBT youth.

Fisher, C. B., & Mustanski, B. (2014). Reducing health disparities and enhancing the responsible conduct of research involving LGBT youth. Hastings Center Report, 44(s4), pp. s28-s31.

Shoulder-to-shoulder research with children: Methodological and ethical considerations.

Griffin, K. M., Lahman, M. K., & Opitz, M. F. (2016). Shoulder-to-shoulder research with children: Methodological and ethical considerations. Journal of Early Childhood Research, 14(1), pp. 18-27.

Disclosure of incidental genomic findings involving children: Are we making progress?

Williams, J. K., Driessnack, M., Daack-Hirsch, S., Downing, N., & Simon, C. (2013). Disclosure of incidental genomic findings involving children: Are we making progress? Personalized Medicine, 10(6), pp. 519-521.

Between the personal and the professional: Ethical challenges when using visual ethnography to understand young people’s use of popular visual material culture.

Eglinton, K. A. (2013). Between the personal and the professional: Ethical challenges when using visual ethnography to understand young people’s use of popular visual material culture. Young: The Nordic Journal of Youth Research, 21(3), pp. 253-271.

Returning incidental findings from genetic research to children: Views of parents of children affected by rare diseases.

Kleiderman, E., Knoppers, B. M., Fernandez, C. V., Boycott, K. M., Ouellette, G., Wong-Rieger, D., et al. (2014). Returning incidental findings from genetic research to children: Views of parents of children affected by rare diseases. Journal of Medical Ethics, 40, pp. 691-696.

Interrupting life history: The evolution of relationship within research.

Hallett, R. E. (2013). Interrupting life history: The evolution of relationship within research. Qualitative Report, 18(27).

Diverse perceptions of the informed consent process: Implications for the recruitment and participation of diverse communities in the National Children’s Study.

Lakes, K. D., Vaughan, E., Jones, M., Burke, W., Baker, D., & Swanson, J. M. (2012). Diverse perceptions of the informed consent process: Implications for the recruitment and participation of diverse communities in the National Children’s Study. American Journal of Community Psychology, 49(1-2), pp. 215-232.

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The ERIC website emerged primarily through a collaboration between the Centre for Children and Young People at Southern Cross University, Australia, and UNICEF’s Office of Research, Innocenti. The website content is based on the following publication: Graham, A., Powell, M.A., Taylor, N., Anderson, D. & Fitzgerald, R. (2013). Ethical Research Involving Children. UNICEF: Florence. (Available in English, français, español, 한국어, Türkçe and Bahasa Indonesia).

All case studies, blogs posts, photos and library material remain the property of the cited author or publisher.

Other website content is licensed under a Creative Commons Creative Commons Attribution 4.0 International License (CC-BY licence) © UNICEF 2022. Subsequent website updates are undertaken by the ERIC team at Southern Cross University in line with this license. Questions can be directed to ccyp@scu.edu.au.

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