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Tag: North America

Obtaining meaningful informed consent: Preliminary results of a study to develop visual informed consent forms with children.

Ruiz-Casares, M., & Thompson, J. (2016). Obtaining meaningful informed consent: Preliminary results of a study to develop visual informed consent forms with children. Children’s Geographies, 14(1), pp. 35-45.

The adolescent research participant: Strategies for productive and ethical interviewing.

Mack, R., Giarelli, E., & Bernhardt, B. A. (2009). The adolescent research participant: Strategies for productive and ethical interviewing. Journal of Pediatric Nursing: Nursing Care of Children and Families, 24(6), pp. 448-457.

The experiences of children enrolled in pediatric oncology research: Implications for assent.

Unguru, Y., Sill, A. M., & Kamani, N. (2010). The experiences of children enrolled in pediatric oncology research: Implications for assent. Pediatrics, 125(4), e876.

Interdisciplinary studies of childhood ethics: Developing a new field of inquiry.

Carnevale, F. A., Campbell, A., Collin-Vézina, D., & Macdonald, M. E. (2015). Interdisciplinary studies of childhood ethics: Developing a new field of inquiry. Children & Society, 29(6), pp. 511-523.

Ethical considerations of children’s digital image-making and image-audiancing in early childhood environments.

Eckhoff, A. (2015). Ethical considerations of children’s digital image-making and image-audiancing in early childhood environments. Early Child Development and Care, 185(10), pp. 1617-1628.

How do institutional review boards apply the federal risk and benefit standards for pediatric research?

Shah, S., Whittle, A., Wilfond, B., Gensler, G., & Wendler, D. (2004). How do institutional review boards apply the federal risk and benefit standards for pediatric research? Journal for the American Medical Association, 291(4), pp. 476-482.

Adolescent distress in traumatic stress research: Data from the National Survey of Adolescents-Replication.

Zajac, K., Ruggiero, K. J., Smith, D. W., Saunders, B. E., & Kilpatrick, D. G. (2011). Adolescent distress in traumatic stress research: Data from the National Survey of Adolescents-Replication. Journal of Traumatic Stress, 24(2), pp. 226-229.

Views of adolescents and parents on pediatric research without the potential for clinical benefit.

Wendler, D., Abdoler, E., Wiener, L., & Grady, C. (2012). Views of adolescents and parents on pediatric research without the potential for clinical benefit. Pediatrics, 130(4), pp. 692-699.

Children’s and their parents’ views on facing research risks for the benefit of others.

Wendler, D., & Jenkins, T. (2008). Children’s and their parents’ views on facing research risks for the benefit of others. Archives of Pediatrics & Adolescent Medicine, 162(1), pp. 9-14.

Comparisons of adolescent and parent willingness to participate in minimal and above-minimal risk pediatric asthma research protocols.

Brody, J. L., Annett, R. D., Scherer, D. G., Perryman, M. L., & Cofrin, K. M. W. (2005). Comparisons of adolescent and parent willingness to participate in minimal and above-minimal risk pediatric asthma research protocols. Journal of Adolescent Health, 37(3), pp. 229-235.

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ERIC

The ERIC website emerged primarily through a collaboration between the Centre for Children and Young People at Southern Cross University, Australia, and UNICEF’s Office of Research, Innocenti. The website content is based on the following publication: Graham, A., Powell, M.A., Taylor, N., Anderson, D. & Fitzgerald, R. (2013). Ethical Research Involving Children. UNICEF: Florence. (Available in English, français, español, 한국어, Türkçe and Bahasa Indonesia).

All case studies, blogs posts, photos and library material remain the property of the cited author or publisher.

Other website content is licensed under a Creative Commons Creative Commons Attribution 4.0 International License (CC-BY licence) © UNICEF 2022. Subsequent website updates are undertaken by the ERIC team at Southern Cross University in line with this license. Questions can be directed to ccyp@scu.edu.au.

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