Returning incidental findings from genetic research to children: Views of parents of children affected by rare diseases.

Kleiderman, E., Knoppers, B. M., Fernandez, C. V., Boycott, K. M., Ouellette, G., Wong-Rieger, D., et al. (2014). Returning incidental findings from genetic research to children: Views of parents of children affected by rare diseases. Journal of Medical Ethics, 40, pp. 691-696.

An Open Access version of this article is freely available via the Publisher’s Link below.

[button color=”primary” link=http://dx.doi.org/10.1136/medethics-2013-101648 target=”_blank”]Publisher’s Link[/button]

Partners

Contact

General

FAQ

Take Down Notice

Socials

ERIC

The ERIC website emerged primarily through a collaboration between the Centre for Children and Young People at Southern Cross University, Australia, and UNICEF’s Office of Research, Innocenti. The website content is based on the following publication: Graham, A., Powell, M.A., Taylor, N., Anderson, D. & Fitzgerald, R. (2013). Ethical Research Involving Children. UNICEF: Florence. (Available in English, français, español, 한국어, Türkçe and Bahasa Indonesia).

All case studies, blogs posts, photos and library material remain the property of the cited author or publisher.

Other website content is licensed under a Creative Commons Creative Commons Attribution 4.0 International License (CC-BY licence) © UNICEF 2022. Subsequent website updates are undertaken by the ERIC team at Southern Cross University in line with this license. Questions can be directed to ccyp@scu.edu.au.