Research information for minors: Suitable formats and readability. A systematic review.
Grootens‐Wiegers, P., de Vries, M. C., & van den Broek, J. M. (2015). Research information for minors: Suitable formats and readability. A systematic review. Journal of paediatrics and child health, 51(5), pp. 505-511. Please view the abstract for this article via the Publisher’s Link below.
Readability and visuals in medical research information forms for children and adolescents.
Grootens-Wiegers, P., De Vries, M. C., Vossen, T. E., & Van den Broek, J. M. (2015). Readability and visuals in medical research information forms for children and adolescents. Science Communication, 37(1), pp. 89-117. Please view the abstract for this article via the Publisher’s Link below.
Comic strips help children understand medical research: Targeting the informed consent procedure to children’s needs.
Grootens-Wiegers, P., de Vries, M. C., van Beusekom, M. M., van Dijck, L., & van den Broek, J. M. (2015). Comic strips help children understand medical research: targeting the informed consent procedure to children’s needs. Patient education and counseling, 98(4), pp. 518-524. Abstract Objective Children involved in medical research often fail to comprehend essential research […]
Supporting children to make informed decisions about research participation
Julia Truscott It is now standard practice across most disciplines not only to seek consent from parents/carers but to honour children’s rights and dignity by informing them directly about research participation and seeking their own consent to take part. However, providing sufficient, clear and age-appropriate information to allow children to make a suitably informed decision, […]
Innovative ethics: Using animated videos when soliciting informed consent of young people for online surveys.
McInroy, L. B. (2017). Innovative ethics: Using animated videos when soliciting informed consent of young people for online surveys. Social Work Research, 41(2), pp.121-128. This research note discusses the potential of animated video to enhance the informed consent process in on-line research involving young people and the author shares an example: https://www.youtube.com/watch?v=oOzvDAwnmaI Please view the […]
Children and young people’s decision-making in social research about sensitive issues.
Moore, T., McArthur, M., Graham, A., Chalmers, J., Powell, M. A., & Taplin, S. (2020). Children and young people’s decision-making in social research about sensitive issues. Children’s Geographies, 19(6), pp. 689-704. Abstract: Limited attention has been given to what motivates and informs children and young people’s decision to participate (or not) in social research, especially […]
Improving the informed consent process among HIV-infected undisclosed minors participating in a biomedical research: Insights from the multicentre nutritional SNACS study in Senegal.
Hejoaka, F., Varloteaux, M., Desclaux-Sall, C., Ndiaye, S. M., Diop, K., Diack, A., Niasse, F., & Cames, C. (2019). Improving the informed consent process among HIV-infected undisclosed minors participating in a biomedical research: Insights from the multicentre nutritional SNACS study in Senegal. Tropical Medicine & International Health, 24(3), 294-303. This article provides detailed reflection on […]
Using critically reflexive ethics in practice to address issues of representation in children’s rights-based research.
Gaches, S. (2020). Using critically reflexive ethics in practice to address issues of representation in children’s rights-based research. Global Studies of Childhood, 12(4), pp.374-386. This article reflects on the process of trying to put children’s rights into practice in research in early childhood. It documents the researcher’s extensive efforts to engage with critically reflexive ethics […]
Opt-out parental consent in online surveys: Ethical considerations.
Harris, J., & Porcellato, L. (2018). Opt-out parental consent in online surveys: Ethical considerations. Journal of Empirical Research on Human Research Ethics, 13(3), pp. 223-229.
Including and involving young people (under 18’s) in hate research without the consent of parents.
Pickles, J. (2020). Including and involving young people (under 18’s) in hate research without the consent of parents. Qualitative Research, 20(1), pp. 22-38. Abstract: This article provides a reflection on the ethical challenges faced when seeking ethical approval to include young people in a research project examining LGBT+ ‘hate’ experiences. I outline the ethical parameters […]