A novel way to engage youth in research: Evaluation of a participatory health research project by the international children’s advisory network youth council.
Tsang, V. W., Fletcher, S., Thompson, C., & Smith, S. (2020). A novel way to engage youth in research: Evaluation of a participatory health research project by the international children’s advisory network youth council. International Journal of Adolescence and Youth, 25(1), pp. 676-686. This study evaluates the benefits and limitations of involving young patients as […]
Co‐designing clinical trials alongside youth with chronic pain.
Zaslawski, Z., Dib, K., Tsang, V. W., Orr, S. L., Birnie, K. A., Lowthian, T., Alidina, Z., Chesick-Gordis, M., & Kelly, L. E. (2023). Co‐designing clinical trials alongside youth with chronic pain. Paediatric and Neonatal Pain, 5(4), pp.142-154. This paper reports on research involving two young people’s advisory groups who offered insight into recruitment, barriers […]
A blueprint for involvement: Reflections of lived experience co-researchers and academic researchers on working collaboratively.
The Blueprint Writing Collective: Fraser, C., Carrington, B., Crooks, J., Diffey, J., Evans, N., Kirk, S., Lane, R., McGowan, R., Naughton, G., Pryjmachuk, S., Saund, K. & Temple, R. (2022). A blueprint for involvement: Reflections of lived experience co-researchers and academic researchers on working collaboratively. Research Involvement and Engagement, 8(1), Article No: 68. Abstract: Patient […]
Applying co-production principles in research: Reflections from young people and academics.
MacLachlan, A., Pemmasani, P., Jamieson-Mackenzie, I., McMellon, C., Cunningham, E., Lewis, R., & Tisdall, E. K. M. (2024). Applying co-production principles in research: Reflections from young people and academics. Childhood, 31(3), pp. 309-328. Abstract: Co-production, a form of collaborative working, is guided by principles including valuing all participants, building on individual strengths, blurring distinctions between […]
Involving adolescents in the design, implementation, evaluation and dissemination of health research: An umbrella review protocol.
Warraitch, A., Bruce, D., Lee, M., Curran, P., Khraisha, Q., & Hadfield, K. (2023). Involving adolescents in the design, implementation, evaluation and dissemination of health research: An umbrella review protocol. BMJ Open, 13(6), Article No: e069695. This article outlines a research protocol which will involve the development of a set of comprehensive evidence-based guidelines on […]
Strengthening mental health research outcomes through genuine partnerships with young people with lived or living experience: A pilot evaluation study.
Lee, G. Y., McKenna, S., Song, Y. J. C., Hutcheon, A., Hockey, S. J., Laidler, R., Occhipinti, J-A., Perry, C., Lindsay-Smith, T., Ramsay, A., Choi, S., Feirer, D., Shim, A.W., Cottle, J., Mukherjee, A., New, J., You, R., Scott, E.M., Freebairn, L., & Hickie, I. B. (2023). Strengthening mental health research outcomes through genuine partnerships […]
The attitudes of healthy children and researchers towards the challenges of involving children in research: an exploratory study.
Postma, L., Luchtenberg, M. L., Verhagen, A. E., & Maeckelberghe, E. L. (2021). The attitudes of healthy children and researchers towards the challenges of involving children in research: an exploratory study. Research Involvement and Engagement, 7(1), Article No: 30. Abstract Background A growing trend in research is to involve co-researchers. It is referred to as […]
Using technology to seek the vulnerable and marginalized child’s voice in hospital: Co-working with a ‘child research advisory group’ (CRAG).
Clarke, S. (2021). Using technology to seek the vulnerable and marginalized child’s voice in hospital: Co-working with a ‘child research advisory group’ (CRAG). Comprehensive Child and Adolescent Nursing, 44(4), pp. 303-312. This paper reports on the process of working with a CRAG to co-develop simple research questions and a data collection tool which was child […]
Reflective insights from developing a palliative care children and young people’s advisory group.
Roach, A., Braybrook, D., & Marshall, S. (2021). Reflective insights from developing a palliative care children and young people’s advisory group. Palliative Medicine, 35(3), pp. 621-624. In this paper the authors reflect and report on the planning and delivery of a Young People’s Advisory Group in palliative care and health research at a secondary school […]
Young people’s advisory groups in health research: Scoping review and mapping of practices.
Sellars, E., Pavarini, G., Michelson, D., Creswell, C., & Fazel, M. (2021). Young people’s advisory groups in health research: Scoping review and mapping of practices. Archives of disease in childhood, 106(7), pp. 698-704. The authors conducted a scoping review of YPAGs in youth-focused health studies. They share recommendations for consistent reporting of YPAG involvement in […]