Young people’s engagement in online research: Challenges and lessons from conducting focus groups with young people online.
Smith, K.A., Huebner, C., Loughran, T., Eichhorn, J., & Mycock, A. (2024). Young people’s engagement in online research: Challenges and lessons from conducting focus groups with young people online. Journal of Youth Studies, Published Online Ahead of Print. This article explores issues of participation and representation when undertaking research focus groups with adolescents online. It […]
Providing incentives to youth participants in research: A literature review.
Afkinich, J.L., & Blachman-Demnar, D.R. (2020). Providing incentives to youth participants in research: A literature review. Journal of Empirical Research on Human Research Ethics, 15(3), pp.202-215. This article seeks to answer the following question: “What are the concerns and best practices identified in the literature for the appropriate and ethical provision of incentives to children […]
At what price? The current state of subject payment in adolescent research.
Borzekowski, D. L., Rickert, V. I., Ipp, L., & Fortenberry, J. D. (2003). At what price? The current state of subject payment in adolescent research. Journal of Adolescent Health, 33(5), pp. 378-384. Abstract: Purpose: To examine how subject payment was associated with study features, such as investigator characteristics and project specifics, among randomly selected studies […]
Payments to children and adolescents enrolled in research: A pilot study.
Iltis, A.S., DeVader, S., & Matsuo, H. (2006). Payments to children and adolescents enrolled in research: A pilot study. Pediatrics, 118(4), pp. 1546–1552. In this paper the authors share the results of a survey of researchers who have led paediatric health and medical research regarding whether the child participants and/or their parents received any form […]
Ethical and practical concerns in developing payment policies for research involving children and adolescents.
Iltis, A. S., Matsuo, H., & DeVader, S. R. (2008). Currents in contemporary ethics: Ethical and practical concerns in developing payment policies for research involving children and adolescents. Journal of Law, Medicine & Ethics, 36(2), pp. 413–418. In this paper the authors propose a structure for payment policies for ethical research involving children in health […]
Institutional review boards’ attitudes towards renumeration in paediatric research: Ethical considerations.
Flege, M.M. & Thomsen, S.F. (2017). Institutional review boards’ attitudes towards renumeration in paediatric research: Ethical considerations. Journal of Paediatrics and Child Health, 53(12), pp. 1149-1151. In this article the authors explore the attitudes of IRBs towards payment and compensation in paediatric health research, in an effort to find the ethical balance between ensuring recruitment […]
An examination of incentive strategies to increase participation in outcomes research for an adolescent inpatient unity.
Ha, C., Madan, A., Long, T. A., & Sharp, C. (2016). An examination of incentive strategies to increase participation in outcomes research for an adolescent inpatient unity. Journal of Psychiatric Practice, 22(3), pp. 250-256. In this paper the authors wanted to track the progress of young people discharged from in-patient psychiatric treatment. Maintaining young people’s […]
Contrasting views of risk perception and influence of financial compensation between adolescent research participants and their parents.
Wiener, L., Viola, A., Wilfond, B., Wendler, D., & Grady, C. (2014). Contrasting views of risk perception and influence of financial compensation between adolescent research participants and their parents. Journal of Empirical Research on Human Research Ethics, 10(1), pp. 49-58. In this paper the researchers interviewed a sample of 177 adolescents and a parent. Discordance […]
The effect of financial compensation on willingness to supply a child’s blood sample: A randomised control trial.
Acharya, Y., Norton, E.C., & Lumeng, J.C. (2017). The effect of financial compensation on willingness to supply a child’s blood sample: A randomised control trial. Evaluation & the Health Professions, 40(3), pp. 359-371. In this paper the authors explore the impact of compensation, while seeking to strike a balance between compensation and coercion. They identify […]
More for Children: Rights-based methodology for research with children about poverty.
Bessell, S. and O’Sullivan, C. (2024). More for Children: Rights-based methodology for research with children about poverty. Canberra: The Children’s Policy Centre, The Australian National University. More for Children is a program of transformative research that is building our understanding of children’s experiences of poverty to bring change and, ultimately, contribute to ending child poverty […]
