The attitudes of healthy children and researchers towards the challenges of involving children in research: an exploratory study.
Postma, L., Luchtenberg, M. L., Verhagen, A. E., & Maeckelberghe, E. L. (2021). The attitudes of healthy children and researchers towards the challenges of involving children in research: an exploratory study. Research Involvement and Engagement, 7(1), Article No: 30. Abstract Background A growing trend in research is to involve co-researchers. It is referred to as […]
Using technology to seek the vulnerable and marginalized child’s voice in hospital: Co-working with a ‘child research advisory group’ (CRAG).
Clarke, S. (2021). Using technology to seek the vulnerable and marginalized child’s voice in hospital: Co-working with a ‘child research advisory group’ (CRAG). Comprehensive Child and Adolescent Nursing, 44(4), pp. 303-312. This paper reports on the process of working with a CRAG to co-develop simple research questions and a data collection tool which was child […]
Reflective insights from developing a palliative care children and young people’s advisory group.
Roach, A., Braybrook, D., & Marshall, S. (2021). Reflective insights from developing a palliative care children and young people’s advisory group. Palliative Medicine, 35(3), pp. 621-624. In this paper the authors reflect and report on the planning and delivery of a Young People’s Advisory Group in palliative care and health research at a secondary school […]
Young people’s advisory groups in health research: Scoping review and mapping of practices.
Sellars, E., Pavarini, G., Michelson, D., Creswell, C., & Fazel, M. (2021). Young people’s advisory groups in health research: Scoping review and mapping of practices. Archives of disease in childhood, 106(7), pp. 698-704. The authors conducted a scoping review of YPAGs in youth-focused health studies. They share recommendations for consistent reporting of YPAG involvement in […]
Including the child’s voice in research from a longitudinal birth cohort: Insights from the ROLO young person’s advisory group.
Delahunt, A., Callanan, S., Killeen, S. L., McDonnell, C. M., & McAuliffe, F. M. (2023). Including the child’s voice in research from a longitudinal birth cohort: Insights from the ROLO young person’s advisory group. Research Involvement and Engagement, 9(1), Article No: 2. Abstract Background Public and patient involvement (PPI) through Young Person’s Advisory Groups (YPAG) […]
Research‐and health‐related youth advisory groups in Canada: An environmental scan with stakeholder interviews.
Chan, M., Scott, S. D., Campbell, A., Elliott, S. A., Brooks, H., & Hartling, L. (2021). Research‐and health‐related youth advisory groups in Canada: An environmental scan with stakeholder interviews. Health Expectations, 24(5), pp.1763-1779. This study aimed to identify research- and health-related youth advisory groups in Canada and understand the best practices of these groups by […]
Parental waivers to enable adolescent participation in certain forms of health research: lessons from a South African case study.
Strode, A., & Essack, Z. (2022). Parental waivers to enable adolescent participation in certain forms of health research: lessons from a South African case study. BMC Medical Ethics, 23(1), Article No: 98. In this article the authors consider waivers for parental consent in health research with adolescents. Taking the South African context as an example […]
Exploring inequalities in health with young people through online focus groups: Navigating the methodological and ethical challenges.
Woodrow, N., Fairbrother, H., Crowder, M., Goyder, E., Griffin, N., Holding, E., & Quirk, H. (2022). Exploring inequalities in health with young people through online focus groups: navigating the methodological and ethical challenges. Qualitative Research Journal, 22(2), pp. 197-208. In this article the authors share the ethical and methodological challenges, and decisions made, in undertaking […]
The meaning of ethical collaborative research according to young people.
Chrifou, R., Focquaert, F., Messiha, K., Ghaly, M., Altenburg, T., Deforche, B., & Verloigne, M. (2025). The meaning of ethical collaborative research according to young people. International Journal of Adolescence and Youth, 30(1), Article No: 2517099. This open access article shares insights into young people’s own perspectives on conducting ethical, collaborative research. The full article […]
Ethical and practical concerns in developing payment policies for research involving children and adolescents.
Iltis, A. S., Matsuo, H., & DeVader, S. R. (2008). Currents in contemporary ethics: Ethical and practical concerns in developing payment policies for research involving children and adolescents. Journal of Law, Medicine & Ethics, 36(2), pp. 413–418. In this paper the authors propose a structure for payment policies for ethical research involving children in health […]