Small patients, big ethics.
Bailey, C. R., & Yentis, S. M. (2013). Small patients, big ethics. Anaesthesia, 68(1), pp. 6-8.
Ethical and safety guidelines for sexual and reproductive health research and data collection with adolescents.
World Health Organization (WHO). (2011). Ethical and safety guidelines for sexual and reproductive health research and data collection with adolescents. Geneva: World Health Organization (WHO), Department of Reproductive Health and Research.
Understanding consent in research involving children: The ethical issues. A handbook for human research ethics committees and researchers.
Spriggs, M. (2010). Understanding consent in research involving children: The ethical issues. A handbook for human research ethics committees and researchers. Melbourne: Children’s Bioethics Centre (Royal Children’s Hospital Melbourne / University of Melbourne / Murdoch Children’s Research Centre).
International ethical guidelines for epidemiological studies.
Council for International Organizations of Medical Sciences (CIOMS), & World Health Organization (WHO). (2008). International ethical guidelines for epidemiological studies. Geneva: CIOMS.
International ethical guidelines for biomedical research involving human subjects.
Council for International Organizations of Medical Sciences (CIOMS), & World Health Organization (WHO). (2002). International ethical guidelines for biomedical research involving human subjects. Geneva: CIOMS.
Best practices for health research involving children and adolescents: Genetic, pharmaceutical, longitudinal studies and palliative care research.
Avard, D., Black, L., Samuël, J., Griener, G., & Knoppers, B. M. (2012). Best practices for health research involving children and adolescents: Genetic, pharmaceutical, longitudinal studies and palliative care research. Montreal: Centre of Genomics and Policy, McGill University and Maternal Infant Child and Youth Research Network (MICYRN). With the collaboration of Institute for Human Development, […]
Clinical trials in children.
Yeung, V. (2007). Clinical trials in children. In I. Wong, C. Tuleu, I. Castelllo, V. Yeung, & P. Long (Eds.), Paediatric drug handling (pp. 85-115). London: Pharmaceutical Press. ISBN: 9-78085-369-6865.
Children, healing, suffering and voluntary consent.
Alderson, P. (2002). Children, healing, suffering and voluntary consent. In G. Bendelow, M. Carpenter, C. Vautier, & S. Williams (Eds.), Gender, Health and Healing: The public/private divide (Chapter 11). Oxford: Routledge. Paperback ISBN: 9-780-41523-5747; eBook ISBN: 9-780-20399-6751.
When “risk” and “benefit” are open to interpretation—as is generally the case.
Spriggs, M. (2007). When “risk” and “benefit” are open to interpretation—as is generally the case. The American Journal of Bioethics, 7(3). pp. 17-19.
Whither pediatric research and predisposition genetic testing?
Patenaude, A. F., Senecal, K., & Avard, D. (2006). Whither pediatric research and predisposition genetic testing? GenEditorial, 4(2). pp. 31-49.