Ethical Research Involving Children

Best practices for health research involving children and adolescents: Genetic, pharmaceutical, longitudinal studies and palliative care research.

Avard, D., Black, L., Samuël, J., Griener, G., & Knoppers, B. M. (2012). Best practices for health research involving children and adolescents: Genetic, pharmaceutical, longitudinal studies and palliative care research. Montreal: Centre of Genomics and Policy, McGill University and Maternal Infant Child and Youth Research Network (MICYRN). With the collaboration of Institute for Human Development, Child and Youth Health, Canadian Institutes of Health Research and Ethics Office, Canadian Institutes of Health Research.

Description: These Best Practices provide an overview of international and Canadian ethical norms, reflecting the current situation in Canada regarding health research involving children and adolescents. For a more critical analysis of these norms, please refer to Pediatric Research in Canada (D. Avard, J. Samuël and B.M. Knoppers (eds), Les Éditions Thémis, 2009) and La recherche clinique avec les enfants: à la croisée de l’éthique et du droit -Belgique, France, Québec (ML Delfosse, MH Parizeau et JP Amann (éd.) PUL & Anthémis, 2009).

These Best Practices also do not provide specific guidance for research involving the First Nations, Inuit and Métis peoples of Canada. For research involving Aboriginal children and youth, the Best Practices should be used in conjunction with the Tri-Council Policy Statement, Chapter 9, “Research Involving the First Nations, Inuit and Métis Peoples of Canada” (http://www.pre.ethics.gc.ca/eng/policy-politique/initiatives/tcps2-eptc2/chapter9-chapitre9/).

The full guide is available in English and French via the Publisher’s Link below.

Publisher’s Link

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