A didactic approach to presenting verbal and visual information to children participating in research protocols: The comic book informed assent.
Massetti, T., Crocetta, T. B., Guarnieri, R., Silva, T. D. D., Leal, A. F., Voos, M. C., & Monteiro, C. B. D. M. (2018). A didactic approach to presenting verbal and visual information to children participating in research protocols: The comic book informed assent. Clinics, 73: e207. Abstract: OBJECTIVE: When children participate in research protocols, […]
Practical approaches to seeking assent from children.
Kumpunen, S., Shipway, L., Taylor, R.M., Aldiss, S., & Gibson, F. (2012). Practical approaches to seeking assent from children. Nurse Researcher, 19(2), pp. 23-27. Abstract: Aim: To describe and evaluate two approaches–a storyboard and a wordsearch–that the authors used with children aged four to 12 years to obtain assent. Background: The assent process is vital […]
Children’s knowledge of the terms of informed assent.
Lobato, L., Gazzinelli, A., Pedroso, L. S., Barbosa, R., Santos, F. M. M., & Gazzinelli, M. F. (2016). Children’s knowledge of the terms of informed assent. Revista Bioética, 24, pp. 542-556. Abstract: The objective of this study is to describe the knowledge of children and adolescents regarding the information disclosed by the terms of assent […]
Research information for minors: Suitable formats and readability. A systematic review.
Grootens‐Wiegers, P., de Vries, M. C., & van den Broek, J. M. (2015). Research information for minors: Suitable formats and readability. A systematic review. Journal of paediatrics and child health, 51(5), pp. 505-511. Please view the abstract for this article via the Publisher’s Link below.
Readability and visuals in medical research information forms for children and adolescents.
Grootens-Wiegers, P., De Vries, M. C., Vossen, T. E., & Van den Broek, J. M. (2015). Readability and visuals in medical research information forms for children and adolescents. Science Communication, 37(1), pp. 89-117. Please view the abstract for this article via the Publisher’s Link below.
Comic strips help children understand medical research: Targeting the informed consent procedure to children’s needs.
Grootens-Wiegers, P., de Vries, M. C., van Beusekom, M. M., van Dijck, L., & van den Broek, J. M. (2015). Comic strips help children understand medical research: targeting the informed consent procedure to children’s needs. Patient education and counseling, 98(4), pp. 518-524. Abstract Objective Children involved in medical research often fail to comprehend essential research […]
Supporting children to make informed decisions about research participation
Julia Truscott It is now standard practice across most disciplines not only to seek consent from parents/carers but to honour children’s rights and dignity by informing them directly about research participation and seeking their own consent to take part. However, providing sufficient, clear and age-appropriate information to allow children to make a suitably informed decision, […]
Reconsidering assent for randomised control trials in education: Ethical and procedural concerns.
McPherson, A., Saltmarsh, S., & Tomkins, S. (2020). Reconsidering assent for randomised control trials in education: Ethical and procedural concerns. British Educational Research Journal, 46(4), pp. 728-746. Abstract: Despite ongoing disagreement about what kinds of evidence are most valuable to education, there continues to be an increasing push to make a narrow group of scientific […]
Qualitative research with primary school-aged children: Ethical and practical considerations of evalutaing a safeguarding programme in schools.
Jackson-Hollis, V. (2019). Qualitative research with primary school-aged children: Ethical and practical considerations of evalutaing a safeguarding programme in schools. Journal of Children’s Services, 14(3), pp. 194-204. Abstract Purpose: The purpose of this paper is to explore some of the ethical and practical challenges of working with primary school-aged children to conduct qualitative service evaluations […]
Addressing issues of consent and participation in research with young people. By Paulina Billett
The research project involved the exploration and mapping of the social capital of 50 young people aged between 14 and 18 years from a Shire in south-west of Sydney, Australia. This project was undertaken in partnership with a Community Links program. A key question addressed by the study was ‘What is youth social capital?’ A […]