Children’s knowledge of the terms of informed assent.
Lobato, L., Gazzinelli, A., Pedroso, L. S., Barbosa, R., Santos, F. M. M., & Gazzinelli, M. F. (2016). Children’s knowledge of the terms of informed assent. Revista Bioética, 24, pp. 542-556. Abstract: The objective of this study is to describe the knowledge of children and adolescents regarding the information disclosed by the terms of assent […]
Research information for minors: Suitable formats and readability. A systematic review.
Grootens‐Wiegers, P., de Vries, M. C., & van den Broek, J. M. (2015). Research information for minors: Suitable formats and readability. A systematic review. Journal of paediatrics and child health, 51(5), pp. 505-511. Please view the abstract for this article via the Publisher’s Link below.
Readability and visuals in medical research information forms for children and adolescents.
Grootens-Wiegers, P., De Vries, M. C., Vossen, T. E., & Van den Broek, J. M. (2015). Readability and visuals in medical research information forms for children and adolescents. Science Communication, 37(1), pp. 89-117. Please view the abstract for this article via the Publisher’s Link below.
Comic strips help children understand medical research: Targeting the informed consent procedure to children’s needs.
Grootens-Wiegers, P., de Vries, M. C., van Beusekom, M. M., van Dijck, L., & van den Broek, J. M. (2015). Comic strips help children understand medical research: targeting the informed consent procedure to children’s needs. Patient education and counseling, 98(4), pp. 518-524. Abstract Objective Children involved in medical research often fail to comprehend essential research […]
Predictive analytics for children: An assessment of ethical considerations, risks and benefits.
Rahman, Z., & Keseru. J. (2021). Predictive analytics for children: An assessment of ethical considerations, risks and benefits. Innocenti Working Papers 2021-08. UNICEF: Florence. Abstract: This paper examines potential ethical issues, including benefits and risks, associated with predictive analytics as they pertain to children. It is designed to support readers in gaining an overview of […]
Ethical considerations when applying behavioural science in projects focused on children.
Tindall, K., Hayward, L., Hunt, E., & Hickler, B. (2021). Ethical considerations when applying behavioural science in projects focused on children. Innocenti Discussion Papers No.3, UNICEF: Florence. Abstract: Evidence increasingly shows applied behavioural science can positively impact childhood development and contribute to reducing inequalities. However, it is important for practitioners to reflect on the ethical […]
Negotiating ethics-in-action in a long-term research relationship with a young child.
Rutanen, N., Raittila, R., Harju, K., Revilla, Y. L., & Hännikäinen, M. (2023). Negotiating ethics-in-action in a long-term research relationship with a young child. Human Arenas, 6 pp.386-403. This article expands upon discussions around relational ethics by exploring ethics-in action as it arose in a long-term research relationship with a young child. This is an […]
Human Research Ethics Committee experiences and views about children’s participation in research: Results from the MESSI study.
Taplin, S., Chalmers, J., Brown, J., Moore, T., Graham, A., & McArthur, M. (2021). Human Research Ethics Committee experiences and views about children’s participation in research: Results from the MESSI study. Journal of Empirical Research on Human Research Ethics, 17(1-2), pp.70-78. This paper draws on survey data from 229 HREC members and 42 HREC managers […]
The mis/uses of ‘voice’ in (post)qualitative research with children and young people: Histories, politics and ethics.
Mayes, E. (2019). The mis/uses of ‘voice’ in (post)qualitative research with children and young people: Histories, politics and ethics. International Journal of Qualitative Studies in Education, 32(10), pp. 1191-1209. Abstract: This article extends recent attempts to think (post)qualitative research together with decolonial, postcolonial and other critiques – as a frictional, fraught encounter. I review how […]
The relevance of ‘competence’ for enhancing or limiting children’s participation: Unpicking conceptual confusion.
Moran-Ellis, J. & Tisdall, E.K.M. (2019). The relevance of ‘competence’ for enhancing or limiting children’s participation: Unpicking conceptual confusion. Global Studies of Childhood, 9(3), pp.212-223. In this paper the authors analysed conceptualisations of competence in 67 articles, published between 2007 and 2017 in six childhood studies journals, in which ‘competence’ and its variations appeared in […]