When participants in genomic research grow up: Contact and consent at the age of majority.
Brothers, K. B., Holm, I. A., Childerhose, J. E., Antommaria, A. H. M., Bernhardt, B. A., & al., e. (2016). When participants in genomic research grow up: Contact and consent at the age of majority. The Journal of Pediatrics, 168, pp. 226-231.
An observational study of children’s involvement in informed consent for exome sequencing research.
Miller, V. A., Werner-Lin, A., Walser, S. A., Biswas, S., & Bernhardt, B. A. (2016). An observational study of children’s involvement in informed consent for exome sequencing research. Journal of Empirical Research on Human Research Ethics, 12(1), pp. 6-13.
From informed consent to dissemination: Using participatory visual methods with young people with long-term conditions at different stages of research.
Vindrola-Padros, C., Martins, A., Coyne, I., Bryan, G., & Gibson, F. (2016). From informed consent to dissemination: Using participatory visual methods with young people with long-term conditions at different stages of research. Global Public Health, 11(5-6), pp. 636-650.
A cognitive approach for design of a multimedia informed consent video and website in pediatric research.
Antal, H., Bunnell, H. T., McCahan, S. M., Pennington, C., Wysocki, T., & Blake, K. V. (2017). A cognitive approach for design of a multimedia informed consent video and website in pediatric research. Journal of Biomedical Informatics, 66, pp. 248-258.
Adolescents with substance use disorder and assent/consent: Empirical data on understanding biobank risks in genomic research.
Coors, M. E., Raymond, K. M., Hopfer, C. J., Sakai, J., McWilliams, S. K., Young, S., & Mikulich-Gilbertson, S. K. (2016). Adolescents with substance use disorder and assent/consent: Empirical data on understanding biobank risks in genomic research. Drug & Alcohol Dependence, 159, pp. 267-271.
Researching with young children: Seeking assent.
Dockett, S., & Perry, B. (2011). Researching with young children: Seeking assent. Child Indicators Research, 4(2), pp. 231-247.
Safety in online research with women experiencing intimate partner violence: What about the children?
Allenby, R., Dobbs, T., Diesfeld, K., Nada Raja, S., Wilson, D., & Koziol-McLain, J. (2017). Safety in online research with women experiencing intimate partner violence: What about the children? Ethics & Behavior, 27(1), pp. 26-42.
Ethical and methodological issues in qualitative health research involving children.
Huang, X., O’Connor, M., Ke, L.-S., & Lee, S. (2016). Ethical and methodological issues in qualitative health research involving children. Nursing Ethics, 23(3), pp. 339-356.
Ethical issues of clinical trials in paediatric oncology from 2003 to 2013: A systematic review.
Dupont, J.-C. K., Pritchard-Jones, K., & Doz, F. (2016). Ethical issues of clinical trials in paediatric oncology from 2003 to 2013: A systematic review. The Lancet Oncology, 17(5), pp. e187-e197.
Auto-driven photo elicitation interviews in research with children: Ethical and practical considerations.
Ford, K., Bray, L., Water, T., Dickinson, A., Arnott, J., & Carter, B. (2017). Auto-driven photo elicitation interviews in research with children: Ethical and practical considerations. Comprehensive Child and Adolescent Nursing, 40(2), pp. 111-125.