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Tag: health and biomedical research

Non-beneficial pediatric research: Individual and social interests.

Piasecki, J., Waligora, M., & Dranseika, V. (2015). Non-beneficial pediatric research: Individual and social interests. Medicine, Health Care and Philosophy, 18(1), pp. 103-112.

Child’s objection to non-beneficial research: Capacity and distress based models.

Waligora, M., Różyńska, J., & Piasecki, J. (2016). Child’s objection to non-beneficial research: Capacity and distress based models. Medicine, Health Care and Philosophy, 19(1), pp. 65-70.

Informed consent in pediatric research.

Leibson, T., & Koren, G. (2015). Informed consent in pediatric research. Pediatric Drugs, 17(1), pp. 5-11.

Engaging with children in research: Theoretical and practical implications of negotiating informed consent/assent.

Lambert, V., & Glacken, M. (2011). Engaging with children in research: Theoretical and practical implications of negotiating informed consent/assent. Nursing Ethics, 18(6), pp. 781-801.

Deception of children in research.

Spriggs, M., & Gillam, L. (2015). Deception of children in research. Journal of Medical Ethics, 41, pp. 179-182.

Behavioral science research informs bioethical issues in the conduct of large-scale studies of children’s disease risk.

Tercyak, K. P., Swartling, U., Mays, D., Johnson, S. B., & Ludvigsson, J. (2013). Behavioral science research informs bioethical issues in the conduct of large-scale studies of children’s disease risk. American Journal of Bioethics Primary Research, 4(3), pp. 4-14.

How to make the research ethics committee your new best friend.

Kaiser, A., & Carr, R. (2013). How to make the research ethics committee your new best friend. Archives of Disease in Childhood – Education & Practice Edition, 98, pp. 173-174.

The disclosure of incidental genomic findings: An “ethically important moment” in pediatric research and practice.

Driessnack, M., Daack-Hirsch, S., Downing, N., Hanish, A., Shah, L., Alasagheirin, M., Simon, C.M., Williams, J.K. (2013). The disclosure of incidental genomic findings: An “ethically important moment” in pediatric research and practice. Journal of Community Genetics, 4(4), pp. 435-444.

On the minimal risk threshold in research with children.

Binik, A. (2014). On the minimal risk threshold in research with children. The American Journal of Bioethics, 14(9), pp. 3-12.

Issues arising from a phenomenological study with children who have diabetes mellitus.

Miller, S. (2000). Researching children: Issues arising from a phenomenological study with children who have diabetes mellitus. Journal of Advanced Nursing, 31(5), pp. 1228-1234.

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ERIC

The ERIC website emerged primarily through a collaboration between the Centre for Children and Young People at Southern Cross University, Australia, and UNICEF’s Office of Research, Innocenti. The website content is based on the following publication: Graham, A., Powell, M.A., Taylor, N., Anderson, D. & Fitzgerald, R. (2013). Ethical Research Involving Children. UNICEF: Florence. (Available in English, français, español, 한국어, Türkçe and Bahasa Indonesia).

All case studies, blogs posts, photos and library material remain the property of the cited author or publisher.

Other website content is licensed under a Creative Commons Creative Commons Attribution 4.0 International License (CC-BY licence) © UNICEF 2022. Subsequent website updates are undertaken by the ERIC team at Southern Cross University in line with this license. Questions can be directed to ccyp@scu.edu.au.

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