Balancing research interests and patient interests: A qualitative study into the intertwinement of care and research in paediatric oncology.
Dekking, S.A.S., van der Graaf, R., Kars, M.C., Beishuizen, A., de Vries, M.C., & van Delden, J.J.M. (2015). Balancing research interests and patient interests: A qualitative study into the intertwinement of care and research in paediatric oncology. Pediatric Blood & Cancer, 62(5), pp. 816-822.
Positioning children’s voice in clinical trials research: A new model for planning, collaboration, and reflection.
Lees, A., Payler, J., Ballinger, C., Lawrence, P., Faust, S. N., & Meads, G. (2017). Positioning children’s voice in clinical trials research: A new model for planning, collaboration, and reflection. Qualitative Health Research, 27(14), pp. 2162-2176.
Ethical aspects of clinical research with minors.
Bos, W., Tromp, K., Tibboel, D., & Pinxten, W. (2013). Ethical aspects of clinical research with minors. European Journal of Pediatrics, 172(7), pp. 859-866.
Does benefit justify research with children?
Binik, A. (2017). Does benefit justify research with children? Bioethics. 32(1), pp.27-35.
Nothing about us without RIGHTS — meaningful engagement of children and youth: From research prioritization to clinical trials, implementation science, and policy.
Oliveras, C., Cluver, L., Bernays, S., & Armstrong, A. (2018). Nothing about us without RIGHTS — meaningful engagement of children and youth: From research prioritization to clinical trials, implementation science, and policy. Journal of Acquired Immune Deficiency Syndromes (1999), 78(1), pp. s27-s31.
Ethical issues of clinical trials in children.
Sammons, H., & Starkey, E. (2016). Ethical issues of clinical trials in children. Paediatrics and Child Health, 26(3), pp. 95-98.
Biomedical ethics and clinical oversight in multisite observational neuroimaging studies with children and adolescents: The ABCD experience.
Clark, D. B., Fisher, C. B., Bookheimer, S., Brown, S. A., Evans, J. H., Hopfer, C., . . . Yurgelun-Todd, D. (2018). Biomedical ethics and clinical oversight in multisite observational neuroimaging studies with children and adolescents: The ABCD experience. Developmental Cognitive Neuroscience, 32, pp. 143-154.
Ethical conduct of research in children: Pediatricians and their IRB (Part 1 of 2).
Rose, C. D. (2017). Ethical conduct of research in children: Pediatricians and their IRB (Part 1 of 2). Pediatrics. 139(5), e20163648.
Ethical pathways to informed consent when collecting information from children in research.
Samuel, I., Parkes, T., & Aduak, Y. (2016). Ethical pathways to informed consent when collecting information from children in research. Interventional Pediatrics and Research, 1(1), Article No. 102.
Why collaborate with children in health research: An analysis of the risks and benefits of collaboration with children.
Bird, D., Culley, L., & Lakhanpaul, M. (2013). Why collaborate with children in health research: An analysis of the risks and benefits of collaboration with children. Archives of disease in childhood – Education & practice edition, 98, pp. 42-48.