Children as active participants in health literacy research and practice? From rhetoric to rights.
Bond, E., & Rawlings, V. (2019). Children as active participants in health literacy research and practice? From rhetoric to rights. In O. Okan, U. Bauer, D. Levin-Zamir, P. Pinheiro, & K. Sørensen (Eds.), International Handbook of Health Literacy: Research, practice and policy across the lifespan. Bristol, UK: Policy Press. ISBN: 978-1-443-4452-0 OA This whole book […]
Involving children with neurodevelopmental disorders in biomedical research.
Illes, J., Antle, A., Lou, H., Longstaff, H., Rahimzadeh, V., McDonald, P. J., . . . Kids Brain Health Network Working Group on Involving Children with Neurodevelopmental Disorders in Research. (2019). Involving children with neurodevelopmental disorders in biomedical research. The Lancet: Child & Adolescent Health, 3(3), pp.143-144. This is an open access article. The full […]
Conversations between procedural and situated ethics: Learning from video research with children in a cancer care ward.
Tutenel, P., Ramaekers, S., & Heylighen, A. (2019). Conversations between procedural and situated ethics: Learning from video research with children in a cancer care ward. The Design Journal, 22, pp. 641-654. This is an open access article. The pdf is freely available to view and download via the Publisher’s Link below.
Kids in Action: Participatory health research with children.
Gibbs, L., Marinkovic, K., Black, A. L., Gladstone, B., Dedding, C., Dadich, A., O’Higgins, S., Abma, T., Cartmel, M., & Acharya, L. (2018). Kids in Action: Participatory health research with children. In M. Wright & K. Kongats (Eds.), Participatory Health Research (pp. 93-113). Cham: Springer. Abstract: Involving children in participatory health research (PHR) provides exciting […]
Challenges in receiving research ethics committee approval for studies involving children and young people with life-limiting coniditions and life-threatening illnesses: Analysis of research ethics committee minutes and correspondence with principle investigators.
Butler, A., Vincent, K., & Bluebond-Langner, M. (2018). Challenges in receiving research ethics committee approval for studies involving children and young people with life-limiting coniditions and life-threatening illnesses: Analysis of research ethics committee minutes and correspondence with principle investigators. Archives of Disease in Childhood, 103(2) ,pp.A19. Please view the abstract for this article via the […]
Developing a new justification for assent.
Sibley, A., Pollard, A. J., Fitzpatrick, R., & Sheehan, M. (2016). Developing a new justification for assent. BMC Medical Ethics, 17(1), pp.2. This is an open access article. The pdf is freely available via the Publisher’s Link below.
Ethics and research with children: A case-based approach.
Kodish, E., & Nelson, R. M. (Eds.). (2019). Ethics and research with children: A case-based approach (2nd ed.). New York: Oxford University Press. ISBN: 9780190647254 Publisher’s Description: In Ethics and Research with Children, authors present and discuss challenging cases in the field of pediatric research ethics. This 2nd Edition includes a revised and updated introduction […]
Children in health research: A matter of trust.
Woodgate, R. L., & Edwards, M. (2010). Children in health research: A matter of trust. Journal of Medical Ethics, 36(4), 211-216. Please view the abstract for this article via the Publisher’s Link below.
Research ethics for mental health science involving ethnic minority children and youths.
Fisher, C.B., Boyce, C., Duster, T., Frank, D.A., Grisso, T., Levine, R. J., Macklin, R., Spencer, M.B., Takanishi, R., Trimble, J.E., Zayas, L.H. (2002). Research ethics for mental health science involving ethnic minority children and youths. American Psychologist, 57(12), pp. 1024-1040.
Adolescent perspectives on Phase I cancer research.
Miller, V.A., Baker, J.N., Leek, A.C., Hizlan, S., Rheingold, S.R., Yamokoski, A.D., Drotar, D., & Kodish, E. (2013). Adolescent perspectives on Phase I cancer research. Pediatric Blood & Cancer, 60(5), pp. 873-878.