Ethics and research with children: A case-based approach.
Kodish, E., & Nelson, R. M. (Eds.). (2019). Ethics and research with children: A case-based approach (2nd ed.). New York: Oxford University Press. ISBN: 9780190647254 Publisher's Description: In Ethics and Research with Children, authors present and discuss challenging cases in the
Children in health research: A matter of trust.
Woodgate, R. L., & Edwards, M. (2010). Children in health research: A matter of trust. Journal of Medical Ethics, 36(4), 211-216. Please view the abstract for this article via the Publisher's Link below.
Research ethics for mental health science involving ethnic minority children and youths.
Fisher, C.B., Boyce, C., Duster, T., Frank, D.A., Grisso, T., Levine, R. J., Macklin, R., Spencer, M.B., Takanishi, R., Trimble, J.E., Zayas, L.H. (2002). Research ethics for mental health science involving ethnic minority children and youths. American Psychologist, 57(12), pp. 1024-1040.
Adolescent perspectives on Phase I cancer research.
Miller, V.A., Baker, J.N., Leek, A.C., Hizlan, S., Rheingold, S.R., Yamokoski, A.D., Drotar, D., & Kodish, E. (2013). Adolescent perspectives on Phase I cancer research. Pediatric Blood & Cancer, 60(5), pp. 873-878.
Balancing research interests and patient interests: A qualitative study into the intertwinement of care and research in paediatric oncology.
Dekking, S.A.S., van der Graaf, R., Kars, M.C., Beishuizen, A., de Vries, M.C., & van Delden, J.J.M. (2015). Balancing research interests and patient interests: A qualitative study into the intertwinement of care and research in paediatric oncology. Pediatric Blood & Cancer, 62(5), pp. 816-822.
Positioning children’s voice in clinical trials research: A new model for planning, collaboration, and reflection.
Lees, A., Payler, J., Ballinger, C., Lawrence, P., Faust, S. N., & Meads, G. (2017). Positioning children’s voice in clinical trials research: A new model for planning, collaboration, and reflection. Qualitative Health Research, 27(14), pp. 2162-2176.
Ethical aspects of clinical research with minors.
Bos, W., Tromp, K., Tibboel, D., & Pinxten, W. (2013). Ethical aspects of clinical research with minors. European Journal of Pediatrics, 172(7), pp. 859-866.
Does benefit justify research with children?
Binik, A. (2017). Does benefit justify research with children? Bioethics. 32(1), pp.27-35.
Nothing about us without RIGHTS — meaningful engagement of children and youth: From research prioritization to clinical trials, implementation science, and policy.
Oliveras, C., Cluver, L., Bernays, S., & Armstrong, A. (2018). Nothing about us without RIGHTS — meaningful engagement of children and youth: From research prioritization to clinical trials, implementation science, and policy. Journal of Acquired Immune Deficiency Syndromes (1999), 78(1), pp. s27-s31.
Ethical issues of clinical trials in children.
Sammons, H., & Starkey, E. (2016). Ethical issues of clinical trials in children. Paediatrics and Child Health, 26(3), pp. 95-98.