Why collaborate with children in health research: An analysis of the risks and benefits of collaboration with children.
Bird, D., Culley, L., & Lakhanpaul, M. (2013). Why collaborate with children in health research: An analysis of the risks and benefits of collaboration with children. Archives of disease in childhood - Education & practice edition, 98, pp. 42-48.
Non-beneficial pediatric research: Individual and social interests.
Piasecki, J., Waligora, M., & Dranseika, V. (2015). Non-beneficial pediatric research: Individual and social interests. Medicine, Health Care and Philosophy, 18(1), pp. 103-112.
Child’s objection to non-beneficial research: Capacity and distress based models.
Waligora, M., Różyńska, J., & Piasecki, J. (2016). Child’s objection to non-beneficial research: Capacity and distress based models. Medicine, Health Care and Philosophy, 19(1), pp. 65-70.
Informed consent in pediatric research.
Leibson, T., & Koren, G. (2015). Informed consent in pediatric research. Pediatric Drugs, 17(1), pp. 5-11.
Engaging with children in research: Theoretical and practical implications of negotiating informed consent/assent.
Lambert, V., & Glacken, M. (2011). Engaging with children in research: Theoretical and practical implications of negotiating informed consent/assent. Nursing Ethics, 18(6), pp. 781-801.
Deception of children in research.
Spriggs, M., & Gillam, L. (2015). Deception of children in research. Journal of Medical Ethics, 41, pp. 179-182.
Behavioral science research informs bioethical issues in the conduct of large-scale studies of children’s disease risk.
Tercyak, K. P., Swartling, U., Mays, D., Johnson, S. B., & Ludvigsson, J. (2013). Behavioral science research informs bioethical issues in the conduct of large-scale studies of children's disease risk. American Journal of Bioethics Primary Research, 4(3), pp. 4-14.
How to make the research ethics committee your new best friend.
Kaiser, A., & Carr, R. (2013). How to make the research ethics committee your new best friend. Archives of Disease in Childhood - Education & Practice Edition, 98, pp. 173-174.
The disclosure of incidental genomic findings: An “ethically important moment” in pediatric research and practice.
Driessnack, M., Daack-Hirsch, S., Downing, N., Hanish, A., Shah, L., Alasagheirin, M., Simon, C.M., Williams, J.K. (2013). The disclosure of incidental genomic findings: An “ethically important moment” in pediatric research and practice. Journal of Community Genetics, 4(4), pp. 435-444.
On the minimal risk threshold in research with children.
Binik, A. (2014). On the minimal risk threshold in research with children. The American Journal of Bioethics, 14(9), pp. 3-12.