More on altruism, moral behavior, and assent by children for research.
Shader, R. (2017). More on Altruism, Moral Behavior, and Assent by Children for Research. Clinical Therapeutics, 39(10), pp. 1907-1910.
Accessing young people who self-harm as research participants.
Cleaver, K. (2017). Accessing young people who self-harm as research participants. Sage Research Methods Cases. Retrieved from http://methods.sagepub.com/case/accessing-young-people-who-self-harm-as-research-participants.
Defining the boundaries of a right to adequate protection: A new lens on pediatric research ethics.
DeGrazia, D., Groman, M., & Lee, L. M. (2017). Defining the boundaries of a right to adequate protection: A new lens on pediatric research ethics. The Journal of Medicine and Philosophy: A Forum for Bioethics and Philosophy of Medicine, 42(2), pp. 132-153.
Assent in paediatric research: Theoretical and practical considerations.
Wendler, D. S. (2006). Assent in paediatric research: Theoretical and practical considerations. Journal of Medical Ethics, 32(4), pp. 229-234.
When to start paediatric testing of the adult HIV cure research agenda?
Shah, S. K. (2017). When to start paediatric testing of the adult HIV cure research agenda? Journal of Medical Ethics, 43(2), pp. 82-86.
To stop or not to stop: Dissent and undue burden as reasons to stop participation in paediatric research.
Bos, W., Westra, A., de Beaufort, I., & van de Vathorst, S. (2017). To stop or not to stop: Dissent and undue burden as reasons to stop participation in paediatric research. Journal of Medical Ethics, 43(8), pp. 519-523.
A developmental approach to child assent for nontherapeutic research.
Miller, V. A., & Nelson, R. M. (2006). A developmental approach to child assent for nontherapeutic research. The Journal of Pediatrics, 149(1), pp. 25-30.
Children’s consent and paediatric research: Is it appropriate for healthy children to be the decision-makers in clinical research?
John, T., Hope, T., Savulescu, J., Stein, A., & Pollard, A. J. (2008). Children’s consent and paediatric research: Is it appropriate for healthy children to be the decision-makers in clinical research? Archives of Disease in Childhood, 93(5), pp. 379.
Assent in research: The voices of adolescents.
Grady, C., Wiener, L., Abdoler, E., Trauernicht, E., Zadeh, S., Diekema, D. S., .Wilfond, B.S., & Wendler, D. (2014). Assent in Research: The Voices of Adolescents. Journal of Adolescent Health, 54(5), pp. 515-520.
Accuracy of the macarthur competence assessment tool for clinical research (MacCAT-CR) for measuring children’s competence to consent to clinical research.
Hein, I. M., Troost, P. W., Lindeboom, R., & et al. (2014). Accuracy of the macarthur competence assessment tool for clinical research (MacCAT-CR) for measuring children’s competence to consent to clinical research. JAMA Pediatrics, 168(12), pp. 1147-1153.