Involving children with neurodevelopmental disorders in biomedical research.

Illes, J., Antle, A., Lou, H., Longstaff, H., Rahimzadeh, V., McDonald, P. J., . . . Kids Brain Health Network Working Group on Involving Children with Neurodevelopmental Disorders in Research. (2019). Involving children with neurodevelopmental disorders in biomedical research. The Lancet: Child & Adolescent Health, 3(3), pp.143-144.  This is an open access article. The full […]

Embedding young children’s participation rights into research: How the interactive narrative approach enhances meaningful participation.

Mayne, F., & Howitt, C. (2019). Embedding young children’s participation rights into research: How the interactive narrative approach enhances meaningful participation. International Journal of Early Childhood, 51(3), pp. 335-353.  This research explored how young children’s research participation can be enhanced when an interactive narrative approach is embedded within research to enhance children’s consent to participation […]

Developing a new justification for assent.

Sibley, A., Pollard, A. J., Fitzpatrick, R., & Sheehan, M. (2016). Developing a new justification for assent. BMC Medical Ethics, 17(1), pp.2. This is an open access article. The pdf is freely available via the Publisher’s Link below.

Adolescent perspectives on Phase I cancer research.

Miller, V.A., Baker, J.N., Leek, A.C., Hizlan, S., Rheingold, S.R., Yamokoski, A.D., Drotar, D., & Kodish, E. (2013). Adolescent perspectives on Phase I cancer research. Pediatric Blood & Cancer, 60(5), pp. 873-878.