Caregiver consent for child participation in research: Reaching and protecting the most vulnerable. By Lucie Cluver, Franziska Meinck & Mark Boyes
The Young Carers Study is a national study, designed in collaboration with Universities, the South African government, UNICEF, Save the Children and the National Action Committee for Children affected by HIV and AIDS. The study interviews 6000 children aged 10-17
Tongan children’s involvement in research. By Jo Aldridge
In 2015, for the first time, children and young people in Tonga were invited to take part in research about their lives. From the UK, I worked with the project leaders of two Tongan national charities, Ma’a Ffine mo e
Reciprocity in participatory research with children in precarious contexts. By Tatek Abebe
This case study draws on fieldwork encounters when undertaking research on childhood in precarious contexts in Ethiopia. This research involved children who are found on the margins of society and political economy including AIDS-affected children, parentless children, child beggars, child
Involving children with neurodevelopmental disorders in biomedical research.
Illes, J., Antle, A., Lou, H., Longstaff, H., Rahimzadeh, V., McDonald, P. J., . . . Kids Brain Health Network Working Group on Involving Children with Neurodevelopmental Disorders in Research. (2019). Involving children with neurodevelopmental disorders in biomedical research. The
Advances and challenges in participatory research with vulnerable children in Ireland.
Swords, L. (2012). Advances and challenges in participatory research with vulnerable children in Ireland. The Irish Journal of Psychology, 33(2-3), pp.94-99
Children’s perspectives on the benefits and burdens of research participation.
Barned, C., Dobson, J., Stintzi, A., Mack, D., & O'Doherty, K. C. (2018). Children's perspectives on the benefits and burdens of research participation. AJOB Empirical Bioethics, 9(1), pp. 19-28.
Anonymity, confidentiality and informed consent: Exploring ethical quandaries and dilemmas in research with and about disabled children’s childhoods.
Thackray, L. (2018). Anonymity, confidentiality and informed consent: Exploring ethical quandaries and dilemmas in research with and about disabled children's childhoods. In T. Curran & K. Liddiard (Eds.), The Palgrave Handbook of Disabled Children's Childhood Studies (pp. 299-313). London: Palgrave Macmillan.
What we know about ethical research involving children in humanitarian settings: An overview of principles, the literature and case studies. Innocenti Working Paper No. 2016-18.
Berman, G., Hart, J., O'Mathúna, D., Mattellone, E., Potts, A., O'Kane, C., Shusterman, J., & Tanner, T. (2016). What we know about ethical research involving children in humanitarian settings: An overview of principles, the literature and case studies. Innocenti Working Paper No. 2016-18. Florence: UNICEF Office of Research.
‘If you look, you have to leave’: Young children regulating research interviews about experiences of domestic violence.
Evang, A., & Øverlien, C. (2015). ‘If you look, you have to leave’: Young children regulating research interviews about experiences of domestic violence. Journal of Early Childhood Research, 13(2), pp. 113-125.
Towards a relational ethics: Rethinking ethics, agency and dependency in research with children and youth
Meloni, F., Vanthuyne, K., & Rousseau, C. (2015). Towards a relational ethics: Rethinking ethics, agency and dependency in research with children and youth. Anthropological Theory, 15(1), pp. 106-123.