Facilitating future benefit when a participant has a degenerative illness and cannot give consent. Andrew Williams
You can download this ERIC case study as a pdf in English, français, español, 한국어, Türkçe and Bahasa Indonesia. Very often a child with a severe fixed, or an evolving, neurodegenerative condition cannot give meaningful consent to research. The child’s age and the profundity of their evolving neurological condition make consent impossible. Neurodegenerative conditions are […]