Contrasting views of risk perception and influence of financial compensation between adolescent research participants and their parents.
Wiener, L., Viola, A., Wilfond, B., Wendler, D., & Grady, C. (2014). Contrasting views of risk perception and influence of financial compensation between adolescent research participants and their parents. Journal of Empirical Research on Human Research Ethics, 10(1), pp. 49-58. In this paper the researchers interviewed a sample of 177 adolescents and a parent. Discordance […]
The effect of financial compensation on willingness to supply a child’s blood sample: A randomised control trial.
Acharya, Y., Norton, E.C., & Lumeng, J.C. (2017). The effect of financial compensation on willingness to supply a child’s blood sample: A randomised control trial. Evaluation & the Health Professions, 40(3), pp. 359-371. In this paper the authors explore the impact of compensation, while seeking to strike a balance between compensation and coercion. They identify […]
Rhetoric to reality: Challenges and opportunities for embedding young people’s involvement in health research.
Brady, L-M. (2020). Rhetoric to reality: Challenges and opportunities for embedding young people’s involvement in health research. In H. McLaughlin, P. Beresford, C. Cameron, H. Casey, & J. Duffy (Eds.), The Routledge Handbook of Service User Involvement in Human Services Research and Education (pp. 454-466). Routledge: Abingdon. eBook ISBN: 9780429433306. Abstract: Whilst there is growing […]
Supporting children and young people when making decisions about joining clinical trials: Qualitative study to inform multimedia website development.
Martin-Kerry, J.M., Knapp, P., Atkin, K., Bower, P., Watt, I., Stones, C., Higgins, S., Sheridan, R., Preston, J., Taylor, D.H., Baines, P., & Young, B. (2019). Supporting children and young people when making decisions about joining clinical trials: Qualitative study to inform multimedia website development. British Medical Journal Open, 9:e023984. This paper reports upon aspects […]
Ethics and research with children: A case-based approach.
Kodish, E., & Nelson, R. M. (Eds.). (2019). Ethics and research with children: A case-based approach (2nd ed.). New York: Oxford University Press. ISBN: 9780190647254 Publisher’s Description: In Ethics and Research with Children, authors present and discuss challenging cases in the field of pediatric research ethics. This 2nd Edition includes a revised and updated introduction […]
