You can download this ERIC case study as a pdf in English, français, español, 한국어, Türkçe and Bahasa Indonesia. Incidental brain findings (IBFs) are brain abnormalities with no outward symptoms that are detected in healthy children and adults during their participation
Illes, J., Antle, A., Lou, H., Longstaff, H., Rahimzadeh, V., McDonald, P. J., . . . Kids Brain Health Network Working Group on Involving Children with Neurodevelopmental Disorders in Research. (2019). Involving children with neurodevelopmental disorders in biomedical research. The
Williams, J. K., Driessnack, M., Daack-Hirsch, S., Downing, N., & Simon, C. (2013). Disclosure of incidental genomic findings involving children: Are we making progress? Personalized Medicine, 10(6), pp. 519-521.
Returning incidental findings from genetic research to children: Views of parents of children affected by rare diseases.
Kleiderman, E., Knoppers, B. M., Fernandez, C. V., Boycott, K. M., Ouellette, G., Wong-Rieger, D., et al. (2014). Returning incidental findings from genetic research to children: Views of parents of children affected by rare diseases. Journal of Medical Ethics, 40, pp. 691-696.
Nelson, C. A. (2008). Incidental findings in magnetic resonance imaging (MRI) brain research. The Journal of Law, Medicine & Ethics, 36(2), pp. 315-319.
Illes, J., Kirschen, M. P., Karetsky, K., Kelly, M., Saha, A., Desmond, J. E., Raffin, T.A., Glover, G.H., & Atlas, S. W. (2004). Discovery and disclosure of incidental findings in neuroimaging research. Journal of Magnetic Resonance Imaging, 20(5), pp. 742-747.
Morris, Z., Whiteley, W. N., W T Longstreth, J., Weber, F., Lee, Y.-C., Tsushima, Y., Alphs, H., Ladd, S. C., Warlow, C., Wardlaw, J. M., & Salman, R. A.-S. (2009). Incidental findings on brain magnetic resonance imaging: systematic review and meta-analysis. BMJ, 339
Ethical and practical considerations in the management of incidental findings in pediatric MRI studies.
Kumra, S., Ashtari, M., Anderson, B., Cervellione, K. L., & Kan, L. I. (2006). Ethical and practical considerations in the management of incidental findings in pediatric MRI studies. Journal of the American Academy of Child & Adolescent Psychiatry, 45(8). pp. 1000-1006.
Kim, B. S., Illes, J., Kaplan, R. T., Reiss, A., & Atlas, S. W. (2002). Incidental findings on pediatric MR images of the brain. American Journal of Neuroradiology, 23(10), pp. 1674-1677
Jordan, L. C., McKinstry, R. C., Kraut, M. A., Ball, W. S., Vendt, B. A., Casella, J. F., DeBaun, M. R., for the Silent Infarct Transfusion Trial Investigators, & Strouse, J. J. (2010). Incidental findings on brain magnetic resonance imaging of children with sickle cell disease. Pediatrics, 126(1). pp. 53-61.