Helping them decide: A scoping review of interventions used to help minors understand the concept and process of assent.
Weisleder, P. (2020). Helping them decide: A scoping review of interventions used to help minors understand the concept and process of assent. Frontiers in Pediatrics, 8. This mini review article reviews the concepts of assent and dissent in relation to their application in medical research. It also reviews to evaluate children and young people’s capacities […]
Practical approaches to seeking assent from children.
Kumpunen, S., Shipway, L., Taylor, R.M., Aldiss, S., & Gibson, F. (2012). Practical approaches to seeking assent from children. Nurse Researcher, 19(2), pp. 23-27. Abstract: Aim: To describe and evaluate two approaches–a storyboard and a wordsearch–that the authors used with children aged four to 12 years to obtain assent. Background: The assent process is vital […]
Readability and visuals in medical research information forms for children and adolescents.
Grootens-Wiegers, P., De Vries, M. C., Vossen, T. E., & Van den Broek, J. M. (2015). Readability and visuals in medical research information forms for children and adolescents. Science Communication, 37(1), pp. 89-117. Please view the abstract for this article via the Publisher’s Link below.
Involving children and young people in clinical research through the forum of a European Young Persons’ Advisory Group: Needs and challenges.
Gaillard, S., Malik, S., Preston, J., Escalera, B. N., Dicks, P., Touil, N., Mardirossian, S., Claverol-Torres, J., & Kassaï, B. (2018). Involving children and young people in clinical research through the forum of a European Young Persons’ Advisory Group: Needs and challenges. Fundamental & Clinical Pharmacology, 32(4), pp. 357-362. In line with the expansion of […]
Improving the informed consent process among HIV-infected undisclosed minors participating in a biomedical research: Insights from the multicentre nutritional SNACS study in Senegal.
Hejoaka, F., Varloteaux, M., Desclaux-Sall, C., Ndiaye, S. M., Diop, K., Diack, A., Niasse, F., & Cames, C. (2019). Improving the informed consent process among HIV-infected undisclosed minors participating in a biomedical research: Insights from the multicentre nutritional SNACS study in Senegal. Tropical Medicine & International Health, 24(3), 294-303. This article provides detailed reflection on […]
Facilitating future benefit when a participant has a degenerative illness and cannot give consent. Andrew Williams
You can download this ERIC case study as a pdf in English, français, español, 한국어, Türkçe and Bahasa Indonesia. Very often a child with a severe fixed, or an evolving, neurodegenerative condition cannot give meaningful consent to research. The child’s age and the profundity of their evolving neurological condition make consent impossible. Neurodegenerative conditions are […]
Accessing online data for youth mental health research: Meeting the ethical challenges.
Perez Vallejos, E., Koene, A., Carter, C. J., Hunt, D., Woodard, C., Urquhart, L., Bergin, A., & Statache, R. (2019). Accessing online data for youth mental health research: Meeting the ethical challenges. Philosophy & Technology, 32(1), pp. 87-110.
Young people’s views regarding participation in mental health and wellbeing research through social media.
Monks, H., Cardoso, P., Papageorgiou, A., Carolan, C., Costello, L., & Thomas, L. (2015). Young people’s views regarding participation in mental health and wellbeing research through social media. The International Journal of Emotional Education, 7(1), pp. 4-19.
Case study: Ethical guidance for pediatric e-health research using examples from pain research with adolescents.
Henderson, E. M., Law, E. F., Palermo, T. M., & Eccleston, C. (2012). Case study: Ethical guidance for pediatric e-health research using examples from pain research with adolescents. Journal of Pediatric Psychology, 37(10), pp. 1116-1126.
Exploring ethical and methodological issues in internet-based research with adolescents.
Battles, H. T. (2010). Exploring ethical and methodological issues in internet-based research with adolescents. International Journal of Qualitative Methods, 9(1), pp. 27-39.
