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health and biomedical research Tag

Very often a child with a severe fixed, or an evolving, neurodegenerative condition cannot give meaningful consent to research. The child’s age and the profundity of their evolving neurological condition make consent impossible. Neurodegenerative conditions are extremely rare, are still

Perez Vallejos, E., Koene, A., Carter, C. J., Hunt, D., Woodard, C., Urquhart, L., Bergin, A., & Statache, R. (2019). Accessing online data for youth mental health research: Meeting the ethical challenges. Philosophy & Technology, 32(1), pp. 87-110.

Monks, H., Cardoso, P., Papageorgiou, A., Carolan, C., Costello, L., & Thomas, L. (2015). Young people’s views regarding participation in mental health and wellbeing research through social media. The International Journal of Emotional Education, 7(1), pp. 4-19.

Henderson, E. M., Law, E. F., Palermo, T. M., & Eccleston, C. (2012). Case study: Ethical guidance for pediatric e-health research using examples from pain research with adolescents. Journal of Pediatric Psychology, 37(10), pp. 1116-1126.

Illes, J., Antle, A., Lou, H., Longstaff, H., Rahimzadeh, V., McDonald, P. J., . . . Kids Brain Health Network Working Group on Involving Children with Neurodevelopmental Disorders in Research. (2019). Involving children with neurodevelopmental disorders in biomedical research. The

Tutenel, P., Ramaekers, S., & Heylighen, A. (2019). Conversations between procedural and situated ethics: Learning from video research with children in a cancer care ward. The Design Journal, 22, pp. 641-654. This is an open access article. The pdf is freely

Butler, A., Vincent, K., & Bluebond-Langner, M. (2018). Challenges in receiving research ethics committee approval for studies involving children and young people with life-limiting coniditions and life-threatening illnesses: Analysis of research ethics committee minutes and correspondence with principle investigators. Archives