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Tag: genetic research

Disclosure of incidental genomic findings involving children: Are we making progress?

Williams, J. K., Driessnack, M., Daack-Hirsch, S., Downing, N., & Simon, C. (2013). Disclosure of incidental genomic findings involving children: Are we making progress? Personalized Medicine, 10(6), pp. 519-521.

Returning incidental findings from genetic research to children: Views of parents of children affected by rare diseases.

Kleiderman, E., Knoppers, B. M., Fernandez, C. V., Boycott, K. M., Ouellette, G., Wong-Rieger, D., et al. (2014). Returning incidental findings from genetic research to children: Views of parents of children affected by rare diseases. Journal of Medical Ethics, 40, pp. 691-696.

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The ERIC website emerged primarily through a collaboration between the Centre for Children and Young People at Southern Cross University, Australia, and UNICEF’s Office of Research, Innocenti. The website content is based on the following publication: Graham, A., Powell, M.A., Taylor, N., Anderson, D. & Fitzgerald, R. (2013). Ethical Research Involving Children. UNICEF: Florence. (Available in English, français, español, 한국어, Türkçe and Bahasa Indonesia).

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