Qualitative research with primary school-aged children: Ethical and practical considerations of evalutaing a safeguarding programme in schools.
Jackson-Hollis, V. (2019). Qualitative research with primary school-aged children: Ethical and practical considerations of evalutaing a safeguarding programme in schools. Journal of Children’s Services, 14(3), pp. 194-204. Abstract Purpose: The purpose of this paper is to explore some of the ethical
Facilitating future benefit when a participant has a degenerative illness and cannot give consent. Andrew Williams
Very often a child with a severe fixed, or an evolving, neurodegenerative condition cannot give meaningful consent to research. The child’s age and the profundity of their evolving neurological condition make consent impossible. Neurodegenerative conditions are extremely rare, are still
Huser, C. (2019). ‘I want to share this video with you today.’ Children’s participation rights in childhood research. Human Rights Education Review, 2(2), pp. 45-63. Abstract: The Convention on the Rights of the Child foregrounds the right to participate. Contributing to
To stop or not to stop: Dissent and undue burden as reasons to stop participation in paediatric research.
Bos, W., Westra, A., de Beaufort, I., & van de Vathorst, S. (2017). To stop or not to stop: Dissent and undue burden as reasons to stop participation in paediatric research. Journal of Medical Ethics, 43(8), pp. 519-523.
Brown, H. R., Harvey, E. A., Griffith, S. F., Arnold, D. H., & Halgin, R. P. (2017). Assent and dissent: Ethical considerations in research with toddlers. Ethics & Behavior, 27(8), pp. 651-664.
Bruzzese, J.-M., & Fisher, C. B. (2003). Assessing and enhancing the research consent capacity of children and youth. Applied Developmental Science, 7(1), pp. 13-26.
Using interactive nonfiction narrative to enhance competence in the informed consent process with 3-year-old children.
Mayne, F., Howitt, C., & Rennie, L. J. (2017). Using interactive nonfiction narrative to enhance competence in the informed consent process with 3-year-old children. International Journal of Inclusive Education, 21(3), pp. 299-315.
Khoja, N. (2016). Situating children's voices: Considering the context when conducting research with young children. Children & Society, 30(4), pp. 314-323.
Waligora, M., Różyńska, J., & Piasecki, J. (2016). Child’s objection to non-beneficial research: Capacity and distress based models. Medicine, Health Care and Philosophy, 19(1), pp. 65-70.
Dockett, S., Einarsdóttir, J., & Perry, B. (2012). Young children's decisions about research participation: Opting out. International Journal of Early Years Education, 20(3). pp. 244-256.