Ethical considerations for doing research with, and in relation to, disabled children.
Parekh, G., Underwood, K., & Atwal, A. (2021). Ethical considerations for doing research with, and in relation to, disabled children. In Spencer, G. (Ed.). Ethics and integrity in research with children and young people. (pp. 73-86). Emerald Publishing Limited. In this chapter, the authors examine a number of ethical dilemmas that have emerged when conducting […]
“This is not me”–A critical discussion about methodological issues concerning agency and participatory sense-making in qualitative research with children.
Bjorbækmo, W. S., Greve, A., & Asbjørnslett, M. (2022). “This is not me”–A critical discussion about methodological issues concerning agency and participatory sense-making in qualitative research with children. International Journal of Qualitative Methods, 21. This open access article explores and discusses children’s agency in the context of research. It draws on three situations recorded in […]
Ethical considerations for research involving boys diagnosed with attention-deficit/hyperactivity disorder.
Tucker, L. A., & Govender, K. (2017). Ethical considerations for research involving boys diagnosed with attention-deficit/hyperactivity disorder. Early Child Development and Care, 187(7), pp. 1147-1156. Abstract: The ‘new sociology of childhood’ has activated a growing interest in children as social actors and their level of involvement in activities that affect their lives. In the field […]
Re-examining ethical challenges of using ethnography to understand decision-making in family caregiving networks of children with feeding tubes.
Loftus, S. (2022). Re-examining ethical challenges of using ethnography to understand decision-making in family caregiving networks of children with feeding tubes. Children’s Geographies, Published Online Ahead of Print, pp.1-13. Abstract: Researching the experiences of children reliant on family caregivers is methodologically and ethically challenging. Conducting feminist digital ethnography within this context requires rethinking established feminist […]
Relational ethics, informed consent, and informed assent in participatory research with children with complex communication needs.
Van Goidsenhoven, L., & De Schauwer, E. (2022). Relational ethics, informed consent, and informed assent in participatory research with children with complex communication needs. Developmental Medicine & Child Neurology, 64(11), pp.1323-1329. Abstract: There is a need for qualitative participatory research involving children with intellectual disability and complex communication needs (CCNs), but procedural ethics cannot always […]
Prioritising children and young people with disability in research about domestic and family violence: Methodological, ethical and pragmatic reflections.
Robinson, S., Foley, K., Moore, T., Valentine, K., Burton, J., Marshall, A., O’Donnell, M. & Brebner, C. (2023). Prioritising children and young people with disability in research about domestic and family violence: Methodological, ethical and pragmatic reflections. Journal of Family Violence, 38, pp.1191-1204. Abstract: Purpose The perspectives of children and young people with disability who […]
Centring the voices of disabled LGBT+ young people in research: Ethical and methodological considerations.
Franklin, A., & Toft, A. (2020). Centring the voices of disabled LGBT+ young people in research: Ethical and methodological considerations. In: Toft, A. & Franklin, A. Young Disabled and LGBT+: Voices, Identities and Intersections. Routledge: London. ISBN: 9781032175607. The book, ‘Young, Disabled and LGBT+’, brings together the work of an international team interested in exploring […]
’What about my voice’: Emancipating the voices of children with disabilities through participant-centred methods.
Stafford, L. (2017). ‘What about my voice’: Emancipating the voices of children with disabilities through participant-centred methods. Children’s Geographies, 15(5), pp. 600-613. Abstract: Children with diverse physical, communication and/or cognitive impairments are often overlooked as active research participants. This paper challenges and lays bare norms and constructs, such as ableism and adultism, which lead to […]
In the details: The micro-ethics of negotiations and in-situ judgements in participatory design with marginalised children.
Spiel, K., Brulé, E., Frauenberger, C., Bailley, G., & Fitzpatrick, G. (2020). In the details: the micro-ethics of negotiations and in-situ judgements in participatory design with marginalised children. CoDesign, 16(1), pp.45-65. In this article the authors share 7 ‘mice-ethical’ (or situated / in-stu) moments that arose during the course of participatory co-design research with young […]
The complexities and contradictions in participatory research with vulnerable children and young people: A qualitative systematic review.
Bradbury-Jones, C., Isham, L., & Taylor, J. (2018). The complexities and contradictions in participatory research with vulnerable children and young people: A qualitative systematic review. Social Science & Medicine, 215, pp. 80-91. Abstract: Participatory research carried out by or with children, has become a well-established and valuable part of the research landscape investigating children’s lives, […]