In the details: The micro-ethics of negotiations and in-situ judgements in participatory design with marginalised children.
Spiel, K., Brulé, E., Frauenberger, C., Bailley, G., & Fitzpatrick, G. (2020). In the details: the micro-ethics of negotiations and in-situ judgements in participatory design with marginalised children. CoDesign, 16(1), pp.45-65. In this article the authors share 7 ‘mice-ethical’ (or situated / in-stu) moments that arose during the course of participatory co-design research with young […]
The complexities and contradictions in participatory research with vulnerable children and young people: A qualitative systematic review.
Bradbury-Jones, C., Isham, L., & Taylor, J. (2018). The complexities and contradictions in participatory research with vulnerable children and young people: A qualitative systematic review. Social Science & Medicine, 215, pp. 80-91. Abstract: Participatory research carried out by or with children, has become a well-established and valuable part of the research landscape investigating children’s lives, […]
Navigating disability identity and language in research involving children and young people. By Fathimath Shiraani
You can download this case study as a pdf here. Despite contemporary tourism research being more inclusive of previously neglected groups, the views of children with disability are still largely absent, reflecting a disregard for both their agency and voice. My research sought to address this gap by focusing on understanding the holiday experiences of […]
Interviewing children with disability in the presence of a parent. By Berni Kelly
You can download this ERIC case study as a pdf in English, français, español, 한국어, Türkçe and Bahasa Indonesia. Traditionally, social researchers expected parents or other adults to act as proxies for the authentic voices of children with disability. Such exclusionary approaches to childhood disability research were often grounded in assumptions about the inability of […]
The challenge of ongoing consent? By Michael Gaffney
You can download this ERIC case study as a pdf in English, français, español, 한국어, Türkçe and Bahasa Indonesia. When conducting ethnographic or field-based research that involves children with disability, the notion of informed consent requires the researcher to be very thoughtful about what it means to be fully informed across the full range of […]
Dilemmas at school: How and when to support the inclusion of students with disability. By Jude MacArthur
You can download this ERIC case study as a pdf in English, français, español, 한국어, Türkçe and Bahasa Indonesia. In our ethnographic work with children with disability at school, our research team has observed a number of situations where children and young people have been marginalized and excluded from the curriculum, social life and wider […]
Ethical considerations when conducting research with children and young people with disabilities in health and social care.
McNeilly, P., Macdonald, G., & Kelly, B. (2020). Ethical considerations when conducting research with children and young people with disabilities in health and social care. Nurse Researcher, 28(1), pp. 9-15. All children, including those identified as having disabilities, have the right to participate in matters affecting their lives. This paper contributes to the growing research […]
Exploring critical issues in the ethical involvement of children with disabilities in evidence generation and use.
Thompson, S., Cannon, M., & Wickenden, M. (2020). Exploring critical issues in the ethical involvement of children with disabilities in evidence generation and use. Innocenti Working Paper 2020-04. Florence: UNICEF Office of Research – Innocenti. This paper provides an overview of the key issues drawn from the literature reviewed and suggests established and potential mitigation […]
How to conduct good quality research on violence against children with disabilities: Key ethical, measurement, and research principles.
Kyegombe, N., Banks, L. M., Kelly, S., Kuper, H., & Devries, K. M. (2019). How to conduct good quality research on violence against children with disabilities: Key ethical, measurement, and research principles. BMC Public Health, 19(1), 1133. Abstract: Approximately one billion children experience violence every year. Violence against children is an urgent global public health […]
Reflexively conducting research with ethnically diverse children with disabilities.
Ajodhia, A. (2019). Reflexively conducting research with ethnically diverse children with disabilities. In I. R. Berson, M. J. Berson, & C. Gray (Eds.), Participatory Methodologies to Elevate Children’s Voice and Agency (pp. 117-150). Charlotte, North Carolina: Information Age Publishing. Abstract: This reflexive chapter explores the process of engaging ethnically diverse children with disabilities within participatory […]
