Traditionally, social researchers expected parents or other adults to act as proxies for the authentic voices of children with disability. Such exclusionary approaches to childhood disability research were often grounded in assumptions about the inability of children with disability to
When conducting ethnographic or field-based research that involves children with disability, the notion of informed consent requires the researcher to be very thoughtful about what it means to be fully informed across the full range of participants. The school based
Dilemmas at school: How and when to support the inclusion of students with disability. By Jude MacArthur
In our ethnographic work with children with disability at school, our research team has observed a number of situations where children and young people have been marginalized and excluded from the curriculum, social life and wider activities of the school.
Ethical considerations when conducting research with children and young people with disabilities in health and social care.
McNeilly, P., Macdonald, G., & Kelly, B. (2020). Ethical considerations when conducting research with children and young people with disabilities in health and social care. Nurse Researcher, 28(1), pp. 9-15. All children, including those identified as having disabilities, have the
Exploring critical issues in the ethical involvement of children with disabilities in evidence generation and use.
Thompson, S., Cannon, M., & Wickenden, M. (2020). Exploring critical issues in the ethical involvement of children with disabilities in evidence generation and use. Innocenti Working Paper 2020-04. Florence: UNICEF Office of Research - Innocenti. This paper provides an overview of
How to conduct good quality research on violence against children with disabilities: Key ethical, measurement, and research principles.
Kyegombe, N., Banks, L. M., Kelly, S., Kuper, H., & Devries, K. M. (2019). How to conduct good quality research on violence against children with disabilities: Key ethical, measurement, and research principles. BMC Public Health, 19(1), 1133. Abstract: Approximately one billion
Ajodhia, A. (2019). Reflexively conducting research with ethnically diverse children with disabilities. In I. R. Berson, M. J. Berson, & C. Gray (Eds.), Participatory Methodologies to Elevate Children’s Voice and Agency (pp. 117-150). Charlotte, North Carolina: Information Age Publishing. Abstract: This
Including children and young people with cognitive disability in research about personal safety and abuse preventions. By Sally Robinson
Our work with children and young people with disability over the past several years has involved carefully building the conditions necessary for including a wide range of children and young people in research about personal safety and abuse prevention. While
Jenkin, E., Wilson, E., Campain, R., & Clarke, M. (2020). The principles and ethics of including children with disability in child research. Children & Society, 34(1), pp.1-16. Abstract: This paper provides a set of principles and ethics, developed in collaboration between