Involving children and young people in clinical research through the forum of a European Young Persons’ Advisory Group: Needs and challenges.
Gaillard, S., Malik, S., Preston, J., Escalera, B. N., Dicks, P., Touil, N., Mardirossian, S., Claverol-Torres, J., & Kassaï, B. (2018). Involving children and young people in clinical research through the forum of a European Young Persons’ Advisory Group: Needs
Ethics and research with children: A case-based approach.
Kodish, E., & Nelson, R. M. (Eds.). (2019). Ethics and research with children: A case-based approach (2nd ed.). New York: Oxford University Press. ISBN: 9780190647254 Publisher's Description: In Ethics and Research with Children, authors present and discuss challenging cases in the
Children’s views on their involvement in clinical research.
Chappuy, H., Doz, F., Blanche, S., Gentet, J.-C., & Tréluyer, J.-M. (2008). Children's views on their involvement in clinical research. Pediatric Blood & Cancer, 50(5), pp. 1043-1046.
Ethical aspects of clinical research with minors.
Bos, W., Tromp, K., Tibboel, D., & Pinxten, W. (2013). Ethical aspects of clinical research with minors. European Journal of Pediatrics, 172(7), pp. 859-866.
Does benefit justify research with children?
Binik, A. (2017). Does benefit justify research with children? Bioethics. 32(1), pp.27-35.
International Children’s Advisory Network: A multifaceted approach to patient engagement in pediatric clinical research.
Gwara, M., Smith, S., Woods, C., Sheeren, E., & Woods, H. (2017). International Children's Advisory Network: A multifaceted approach to patient engagement in pediatric clinical research. Clinical Therapeutics, 39(10), pp. 1933-1938.
More on altruism, moral behavior, and assent by children for research.
Shader, R. (2017). More on Altruism, Moral Behavior, and Assent by Children for Research. Clinical Therapeutics, 39(10), pp. 1907-1910.
Assent in paediatric research: Theoretical and practical considerations.
Wendler, D. S. (2006). Assent in paediatric research: Theoretical and practical considerations. Journal of Medical Ethics, 32(4), pp. 229-234.
When to start paediatric testing of the adult HIV cure research agenda?
Shah, S. K. (2017). When to start paediatric testing of the adult HIV cure research agenda? Journal of Medical Ethics, 43(2), pp. 82-86.
To stop or not to stop: Dissent and undue burden as reasons to stop participation in paediatric research.
Bos, W., Westra, A., de Beaufort, I., & van de Vathorst, S. (2017). To stop or not to stop: Dissent and undue burden as reasons to stop participation in paediatric research. Journal of Medical Ethics, 43(8), pp. 519-523.