Co‐creation of information materials within the assent process: From theory to practice.
Fons‐Martinez, J., Ferrer‐Albero, C., & Diez‐Domingo, J. (2023). Co‐creation of information materials within the assent process: From theory to practice. Health Expectations, 26(1), pp.429-439. Abstract: The informed consent process is key to safeguarding the autonomy of the participant in medical research. For this process to be valid, the information presented to the potential participant should […]
Re-examining ethical challenges of using ethnography to understand decision-making in family caregiving networks of children with feeding tubes.
Loftus, S. (2022). Re-examining ethical challenges of using ethnography to understand decision-making in family caregiving networks of children with feeding tubes. Children’s Geographies, Published Online Ahead of Print, pp.1-13. Abstract: Researching the experiences of children reliant on family caregivers is methodologically and ethically challenging. Conducting feminist digital ethnography within this context requires rethinking established feminist […]
Supporting children and young people when making decisions about joining clinical trials: Qualitative study to inform multimedia website development.
Martin-Kerry, J.M., Knapp, P., Atkin, K., Bower, P., Watt, I., Stones, C., Higgins, S., Sheridan, R., Preston, J., Taylor, D.H., Baines, P., & Young, B. (2019). Supporting children and young people when making decisions about joining clinical trials: Qualitative study to inform multimedia website development. British Medical Journal Open, 9:e023984. This paper reports upon aspects […]
