Ethics and research with children: A case-based approach.
Kodish, E., & Nelson, R. M. (Eds.). (2019). Ethics and research with children: A case-based approach (2nd ed.). New York: Oxford University Press. ISBN: 9780190647254 Publisher's Description: In Ethics and Research with Children, authors present and discuss challenging cases in the
Promoting children’s informed assent in research participation.
Dockett, S., Perry, B., & Kearney, E. (2012). Promoting children’s informed assent in research participation. International Journal of Qualitative Studies in Education, 26(7), pp. 802-828.
Youth participation in qualitative research: Challenges and possibilities.
Schelbe, L., Chanmugam, A., Moses, T., Saltzburg, S., Williams, L. R., & Letendre, J. (2015). Youth participation in qualitative research: Challenges and possibilities. Qualitative Social Work, 14(4), pp. 504-521.
Assent for children’s participation in research: Why it matters and making it meaningful.
Oulton, K., Gibson, F., Sell, D., Williams, A., Pratt, L., & Wray, J. (2016). Assent for children's participation in research: Why it matters and making it meaningful. Child: Care, Health and Development, 42(4), pp. 588-597.
The family context of assent: Comparison of child and parent perspectives on familial decision-making.
Sibley, A., Fitzpatrick, R., Davis, E., Sheehan, M., & Pollard, A. J. (2017). The family context of assent: Comparison of child and parent perspectives on familial decision-making. Children & Society, Published on-line ahead of print.
Who wants to participate in routine outcome monitoring? Differences between youth in secured residential care who consent or refuse the use of their clinical data for research and policy making.
Nijhof, K. S., van Domburgh, L., Strijbosch, E., Labun, A., Delsing, M., Scholte, R. H. J., & Vermaes, I. P. R. (2017). Who wants to participate in routine outcome monitoring? Differences between youth in secured residential care who consent or refuse the use of their clinical data for research and policy making. Residential Treatment for Children & Youth, 34(3-4), pp. 244-265.
More on altruism, moral behavior, and assent by children for research.
Shader, R. (2017). More on Altruism, Moral Behavior, and Assent by Children for Research. Clinical Therapeutics, 39(10), pp. 1907-1910.
Assent in paediatric research: Theoretical and practical considerations.
Wendler, D. S. (2006). Assent in paediatric research: Theoretical and practical considerations. Journal of Medical Ethics, 32(4), pp. 229-234.
A developmental approach to child assent for nontherapeutic research.
Miller, V. A., & Nelson, R. M. (2006). A developmental approach to child assent for nontherapeutic research. The Journal of Pediatrics, 149(1), pp. 25-30.
Children’s consent and paediatric research: Is it appropriate for healthy children to be the decision-makers in clinical research?
John, T., Hope, T., Savulescu, J., Stein, A., & Pollard, A. J. (2008). Children’s consent and paediatric research: Is it appropriate for healthy children to be the decision-makers in clinical research? Archives of Disease in Childhood, 93(5), pp. 379.