Co‐creation of information materials within the assent process: From theory to practice.
Fons‐Martinez, J., Ferrer‐Albero, C., & Diez‐Domingo, J. (2023). Co‐creation of information materials within the assent process: From theory to practice. Health Expectations, 26(1), pp.429-439. Abstract: The informed consent process is key to safeguarding the autonomy of the participant in medical research.
Relational ethics, informed consent, and informed assent in participatory research with children with complex communication needs.
Van Goidsenhoven, L., & De Schauwer, E. (2022). Relational ethics, informed consent, and informed assent in participatory research with children with complex communication needs. Developmental Medicine & Child Neurology, 64(11), pp.1323-1329. Abstract: There is a need for qualitative participatory research
Helping them decide: A scoping review of interventions used to help minors understand the concept and process of assent.
Weisleder, P. (2020). Helping them decide: A scoping review of interventions used to help minors understand the concept and process of assent. Frontiers in Pediatrics, 8. This mini review article reviews the concepts of assent and dissent in relation to their
‘It’s never okay to say no to teachers’: Children’s research consent and dissent in conforming schools contexts.
Kirby, P., (2020). ‘It’s never okay to say no to teachers’: Children’s research consent and dissent in conforming schools contexts. British Educational Research Journal, 46(4), pp. 811-828. Abstract: This article examines the limits to children giving research consent in everyday school
Supporting children and young people when making decisions about joining clinical trials: Qualitative study to inform multimedia website development.
Martin-Kerry, J.M., Knapp, P., Atkin, K., Bower, P., Watt, I., Stones, C., Higgins, S., Sheridan, R., Preston, J., Taylor, D.H., Baines, P., & Young, B. (2019). Supporting children and young people when making decisions about joining clinical trials: Qualitative study
The challenge of conducting ethical research in preschool.
Larsson, J., Williams, P. & Zetterqvist, A. (2021). The challenge of conducting ethical research in preschool. Early Child Development and Care, 191(4), pp.511-519. Abstract: Formal ethical issues for conducting research are highlighted in national and international guidelines. Even if such
Using a picture book to gain assent in research with young children.
Pyle, A. & Danniels, E. (2016). Using a picture book to gain assent in research with young children. Early Child Development and Care, 186(9), pp.1438-1452. Abstract: There has been a shift in perspective from viewing children as adults-in-the-making to individual agents,
The narrative approach to informed consent: Empowering young children’s rights and meaningful participation.
Mayne, F., & Howitt, C. (2022). The narrative approach to informed consent: Empowering young children's rights and meaningful participation. Routledge: Oxford, UK. Book Description: The Narrative Approach to Informed Consent: Empowering Young Children’s Rights and Meaningful Participation is a practical guide
Reflecting on three creative approaches to informed consent with children under six.
Arnott, L., Martinez-Lejarreta, L., Wall, K., Blaisdell, C., & Palaiologou, I. (2020). Reflecting on three creative approaches to informed consent with children under six. British Educational Research Journal, 46(4), pp.786-810. Abstract: In an era when children’s rights are paramount, there are
Rereading assent in critical literacy research with young children.
Rogers, R., & Labadie, M. (2018). Rereading assent in critical literacy research with young children. Journal of Early Childhood Literacy, 18(3), pp. 396-427. In this paper, the authors report on their efforts to make the assent process an educative experience for