Goodenough, T., Williamson, E., Kent, J., & Ashcroft, R. (2003). ‘What did you think about that?’ Researching children’s perceptions of participation in a longitudinal genetic epidemiological study. Children & Society, 17(2). pp. 113-125.

Abstract: This paper examines how empirical study of children’s involvement in non-therapeutic health research can contribute to our understanding of the significance of the research to the children themselves. This raises issues that are pertinent to, and which will guide policy relating to ethical protection in research. The paper begins with a brief review of the literature considering how children perceive research in general, and non-therapeutic health research in particular. The empirical study is then described, outlining the approach to sampling, recruitment and the focus group method used. This is followed by consideration of several key issues relating to research with children, with particular reference to ethical protection. (Abstract published by arrangement with Wiley Subscription Services, Inc.).

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