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Category : OTHER LITERATURE

Children and the data cycle: Rights and ethics in a big data world.

Berman, G., & Albright, K. (2017). Children and the data cycle: Rights and ethics in a big data world. Innocenti Working Paper 2017/05 Florence: UNICEF Innocenti Research Centre.
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Ethical considerations when using social media for evidence generation.

Berman, G., Powell, J., & Herranz, M. G. (2018). Ethical considerations when using social media for evidence generation. Innocenti Discussion Paper 2018-01. Florence: UNICEF Office of Research – Innocenti.
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Editorial: Forgotten no more: How policy guideline changes are bringing newborns, infants, and children to the forefront of drug discovery and testing.

Maron, J. L. (2017). Editorial: Forgotten no more: How policy guideline changes are bringing newborns, infants, and children to the forefront of drug discovery and testing. Clinical Therapeutics, 39(10), pp. 1918-1919.

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Editorial: Ethics committees, journal publication and research with children.

Robson, E. (2017). Editorial: Ethics committees, journal publication and research with children. Children’s Geographies, Published on-line ahead of print, 1-8.

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Inclusion with protection: Obtaining informed consent when conducting research with adolescents.

Santelli, J., Haerizadeh, S., & McGovern, T. (2017). Inclusion with protection: Obtaining informed consent when conducting research with adolescents. Florence: UNICEF, Office of Research – Innocenti.
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Understanding ethical issues of research participation from the perspective of participating children and adolescents.

Crane, S., & Broome, M. E. (2016). Understanding ethical issues of research participation from the perspective of participating children and adolescents. Paper presented at the 27th International Nursing Research Congress, Cape Town, South Africa.
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Involving children and young people in policy, practice and research.

McLaughlin, H. (Ed.) (2015). Involving children and young people in policy, practice and research. London: National Children’s Bureau.
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What we know about ethical research involving children in humanitarian settings: An overview of principles, the literature and case studies. Innocenti Working Paper No. 2016-18.

Berman, G., Hart, J., O’Mathúna, D., Mattellone, E., Potts, A., O’Kane, C., Shusterman, J., & Tanner, T. (2016). What we know about ethical research involving children in humanitarian settings: An overview of principles, the literature and case studies. Innocenti Working Paper No. 2016-18. Florence: UNICEF Office of Research.
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Guidance for developing ethical research projects involving children.

Department of Child and Youth Affairs. (2012). Guidance for developing ethical research projects involving children. Dublin: Irish Government.
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The importance of confidentiality: Research and promises of confidentiality to children: A legal commentary.

Parkinson, P., & Cashmore, J. (2012). The importance of confidentiality: Research and promises of confidentiality to children: A legal commentary. Ethics 1: Good Research Practice: A brief history of ethics and its implications. On-line: Epigeum Ltd.

Extract from Introduction: The following commentary deals with a legal challenge by Patrick Parkinson, Professor of Law, and Judy Cashmore, Research Psychologist, University of Sydney, in 2002. A decision of the Family Court of Australia indicated that research conducted with children under express promises of confidentiality may be protected from subpoena (a court order to produce the data). The case (T v. L, unreported, 12.10.2001, Collier J, Parramatta) arose from research we conducted on children’s participation in making decisions about residence and contact following their parents’ separation. Parents and children were interviewed only after proceedings were thought to be completed. They were all given express, explicit undertakings of confidentiality, orally and in papers mailed to families by the Family Court of Australia inviting them to contact us.

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