Responding to real world ethical challenges when conducting research with young children in Tanzania. By Kate McAlpine
This case study describes the ethical dilemmas faced in the conduct of a study that sought to answer the question “How do young Tanzanian children experience care?” The study explored the heterogeneous practices that are used by families to care
Implementing international research ethics in the complex realities of local contexts: Poverty, the cultural value of hospitality, and researchers trying to ‘do no harm’ in Pakistan. Sadaf Shallwani
In many cultures around the world, hospitality is a strong value. This is the case in Pakistan. The ethic of hospitality means that guests are treated with great respect and honour, and hosts will go out of their way to
Facilitating future benefit when a participant has a degenerative illness and cannot give consent. Andrew Williams
Very often a child with a severe fixed, or an evolving, neurodegenerative condition cannot give meaningful consent to research. The child’s age and the profundity of their evolving neurological condition make consent impossible. Neurodegenerative conditions are extremely rare, are still
The work with interpreters in a cultural-sensitive environment. By Silvia Exenberger
Important and unique challenges arise when conducting research in a cultural environment more or less unknown to the researcher who follows a Western cultural tradition. Even though researchers arrive well-prepared at the research site in the different culture, they will
The impact of shared information in focus groups on children’s relationships. By Hilde Lauwers
The Flemish Commission of Children’s Rights (Kinderrechtencommissariaat) commissioned Research Centre Childhood & Society (Kind & Samenleving) to construct a questionnaire to determine the incidence and prevalence of child abuse and negligence in Flanders. The questionnaire focused on children between 10
Inclusion and representation issues with child researchers in Uganda. By Clare Feinstein & Claire O’Kane
From September 2006 – October 2008 Save the Children Norway supported children and young people’s participation in a thematic evaluation on children’s participation in armed conflict, post-conflict and peace building in Bosnia-Herzegovina, Guatemala, Nepal, and Uganda. Collaborations with Child Clubs
Interviewing children on sensitive issues around violence: Do survey instruments and processes on violence against children provide adequate measures to protect children aged 13-17 years? By Mary Catherine Maternowska
Numerous countries are engaged in the development and implementation of a nationwide household survey intended to determine the levels of emotional, physical and sexual violence against children. These surveys are being conducted under the direction and with full participation from
Incidental brain findings in neuroimaging research. By Sebastián J. Lipina
Incidental brain findings (IBFs) are brain abnormalities with no outward symptoms that are detected in healthy children and adults during their participation in research studies which apply neuroimaging techniques such as structural (MRI) and functional (fMRI) magnetic resonance imaging, magnetoencephalography
Dilemmas of dealing with distress during interviews with children. By Elsbeth Robson & Ruth Evans
We conducted research projects involving interviews with young caregivers in the context of the HIV epidemic in Zimbabwe, Tanzania and the UK. The children had recent or current caregiving responsibilities looking after a chronically sick family member (often a parent
Finding the balance between protection and participation: What do you do when follow-up services are not readily available? By Mónica Ruiz-Casares
A challenge for researchers is to find the right balance between protecting young people from risk while also providing them with an opportunity for meaningful participation. Researchers confront an ethical dilemma when appropriate follow-up services are not available to young