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Category : JOURNAL ARTICLES

“This feels like school!” Revisiting assent and motivation in research with child participants.

Hordyk, S. R. (2017). “This feels like school!” Revisiting assent and motivation in research with child participants. Child and Adolescent Social Work Journal, Published on-line ahead of print.

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Development of a consensus operational definition of child assent for research.

Tait, A. R., & Geisser, M. E. (2017). Development of a consensus operational definition of child assent for research. BMC Medical Ethics, 18(1), pp. 41-48.
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When participants in genomic research grow up: Contact and consent at the age of majority.

Brothers, K. B., Holm, I. A., Childerhose, J. E., Antommaria, A. H. M., Bernhardt, B. A., & al., e. (2016). When participants in genomic research grow up: Contact and consent at the age of majority. The Journal of Pediatrics, 168, pp. 226-231.
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An observational study of children’s involvement in informed consent for exome sequencing research.

Miller, V. A., Werner-Lin, A., Walser, S. A., Biswas, S., & Bernhardt, B. A. (2016). An observational study of children’s involvement in informed consent for exome sequencing research. Journal of Empirical Research on Human Research Ethics, 12(1), pp. 6-13.
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From informed consent to dissemination: Using participatory visual methods with young people with long-term conditions at different stages of research.

Vindrola-Padros, C., Martins, A., Coyne, I., Bryan, G., & Gibson, F. (2016). From informed consent to dissemination: Using participatory visual methods with young people with long-term conditions at different stages of research. Global Public Health, 11(5-6), pp. 636-650.
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A cognitive approach for design of a multimedia informed consent video and website in pediatric research.

Antal, H., Bunnell, H. T., McCahan, S. M., Pennington, C., Wysocki, T., & Blake, K. V. (2017). A cognitive approach for design of a multimedia informed consent video and website in pediatric research. Journal of Biomedical Informatics, 66, pp. 248-258.
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Adolescents with substance use disorder and assent/consent: Empirical data on understanding biobank risks in genomic research.

Coors, M. E., Raymond, K. M., Hopfer, C. J., Sakai, J., McWilliams, S. K., Young, S., & Mikulich-Gilbertson, S. K. (2016). Adolescents with substance use disorder and assent/consent: Empirical data on understanding biobank risks in genomic research. Drug & Alcohol Dependence, 159, pp. 267-271.
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Researching with young children: Seeking assent.

Dockett, S., & Perry, B. (2011). Researching with young children: Seeking assent. Child Indicators Research, 4(2), pp. 231-247.
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Safety in online research with women experiencing intimate partner violence: What about the children?

Allenby, R., Dobbs, T., Diesfeld, K., Nada Raja, S., Wilson, D., & Koziol-McLain, J. (2017). Safety in online research with women experiencing intimate partner violence: What about the children? Ethics & Behavior, 27(1), pp. 26-42.
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Ethical and methodological issues in qualitative health research involving children.

Huang, X., O’Connor, M., Ke, L.-S., & Lee, S. (2016). Ethical and methodological issues in qualitative health research involving children. Nursing Ethics, 23(3), pp. 339-356.

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